Category Archives: media

SAVE THE DATE FOR THE 6TH ANNUAL 5K Keepin’ It Renal Run/Walk

October 8, 2018 / chris johnson / media

PLEASE MARK YOUR CALENDARS NOW FOR OUR 6TH ANNUAL KEEPIN’ IT RENAL RUN/WALK ON MARCH 23, 2019 AT SUGAR LAND MEMORIAL PARK. ONLINE REGISTRATION SHOULD BE UP SOON. CREATING RENAL MEDULLARY CARCINOMA AWARENESS This is the main fundraiser for the Chris “CJ” Johnson Foundation, Inc. It is because of our supporters that we are able […]

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Marlene Kravitz Shares Her Story About Losing Her Son To RMC

October 3, 2018 / chris johnson / media

Matthew Pennington, Age 37, lived in Albuquerque, New Mexico. Matthew was diagnosed with RMC in January of 2016 and passed away three months later.  His mother, Marlene has consented to sharing her story with other parents who may be faced with the same or possibly different catastrophic illness such as Cancer. Here is where her […]

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RMC Clinical Trials Available at MD Anderson Cancer Center

August 20, 2018 / chris johnson / media

Dr. Msaouel has prepared a trial schema for physicians to know the scheduling of the trial testing the combination of the proteasome inhibitor ixazomib (targeted therapy) with gemcitabine and doxorubicin. The links for the trial are:https://clinicaltrials.gov/ct2/show/NCT03587662  and https://www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials/clinical-trials-index/clinical-trials-detail.ID2018-0065.html MD Anderson now has two trials specifically designed for patients with RMC and renal cell carcinoma unclassified […]

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Dr. Pavlos Msaouel, MD, PhD

July 4, 2018 / chris johnson / media

Congratulations to Pavlos Msaouel, MD, PhD on your new appointment as Assistant Professor, Department of Genitourinary Medical Oncology, MD Anderson Cancer Center. Dr. Msaouel received his medical degree from the University of Athens and has committed a portion of his time to researching Renal Medullary Carcinoma (RMC). He has graciously agreed to provide us with […]

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Jesse Johnson

June 12, 2018 / chris johnson / media, Our Heroes

Jesse was in and out of the emergency room for approximately two months due to pain and blood in his urine. A CT Scan was done in March 2017, which revealed a mass on his kidney due to an infection. He was discharged home with antibiotics. In April, he presented to the emergency room again […]

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“Mama I’m Tired” by Ritchie W Johnson

May 30, 2018 / chris johnson / media

Thirty-nine years into her nursing career, Ritchie Johnson was making plans to retire soon.  She dreamed of relaxing and traveling around the world. Until her youngest son, Chris, was diagnosed with a rare, aggressive, and fatal kidney cancer, known as Renal Medullary Carcinoma (RMC) Ritchie placed her nursing career on hold so that she could […]

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Luis Nunez Diagnosed with RMC

April 23, 2018 / chris johnson / media

My name is Luis Nunez. I was diagnosed with RMC on September 2015 at the age of 28. I have two boys, a 10 and 12 year old. I am married and we live in Jacksonville, FL. I have been getting chemotherapy or some type of treatment every two to three weeks since I was […]

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Dawud “Dave” Potak-Gibbs

April 21, 2018 / chris johnson / media, Our Heroes

    Dawud “Dave” L. Potak-Gibbs left this world on April 21, 2018 with his wife Laura and daughter Summer by his side at home. Dave bravely fought Renal Medullary Carcinoma (RMC) for two years and inspired many with his strength and optimism. Born on February 7, 1983 in Philadelphia, Dave graduated from Germantown High […]

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5th Annual Keepin’ It Renal Run/Walk Update

March 24, 2018 / chris johnson / media

On March 24, 2018, over 200 warriors hit the track in Sugar Land Texas as advocates for Renal Medullary Carcinoma. Our speakers from MD Anderson; Drs. Tannir, Dr. Masaouel and Zita Lim gave an update on RMC research. They did a phenomenal job. My grandson, Marc Johnson II did an excellent job explaining to the […]

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Brian Jimenez

January 11, 2018 / chris johnson / media, Our Heroes

Brian, 23 was the son of Raymond and Gina Mary Jimenez and the oldest of three siblings. He lived in Perth Amboy, New Jersey. Brian fought a hard battle against RMC, an extremely rare and aggressive cancer for two years. Prior to his diagnosis in January 2016 he was working and going to school. He […]

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