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The Chris “CJ” Johnson Foundation Inc., was established in 2013, by Ritchie Johnson in memory of her son, Chris, who passed away in 2012. This foundation is a 501(c)3 non-profit charity organization based in Sugar Land, Texas. The primary focus of the foundation is to identify individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer. We offer programs that heighten awareness, educate and promote advocacy to increase public understanding, and ultimately a cure for RMC. Additionally, the foundation donates annually to University of Texas MD Anderson Cancer Center located in Houston, Texas to advance RMC research.

Our mission is to be a global community dedicated to creating awareness and alleviating healthcare disparities for individuals diagnosed with RMC through advocacy, education and research. Ultimately, all persons affected with RMC will have equal access to institutions that are leaders in cutting-edge research.

Our vision is to eliminate healthcare disparities and find a cure for renal medullary carcinoma (RMC)

WHAT IS OUR NEXT STEP?

We are advocating for a CHANGE.

There is a need to increase awareness in communities with a high prevalence of sickle cell trait and other sickle blood disorders. We must work together and with support from our state and Congress, we can and should eliminate healthcare disparities. Dr. Nizar Tannir, world-renowned physician at UT MD Anderson Cancer Center, eloquently stated, “This under-appreciation of the true prevalence of RMC is an example of healthcare disparity. This is why we need to double our efforts to help the RMC community.”

We must drive processes to end healthcare disparities and to enhance cancer prevention, detection, and treatment programs. The lives of RMC patients matters and they deserve to receive quality care.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W. Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

Carlos Moran

Carlos Moran was an elementary school teacher, national Judo Champion, an amazing uncle, son, brother and loving husband to his wife, Charissa. If you knew Carlos or just met him on the street, you would instantly notice that he had a positive outlook on life. He was an incredibly sweet ...
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Unconscious Bias Campaign

Unconscious biases are learned stereotypes that are automatic, unintentional, deeply ingrained, universal, and able to influence behavior When Chris Johnson was formulating his vision for the Chris "CJ" Johnson Foundation Inc., he did not want to be perceived as a cancer patient, or as a victim, or pitied in any ...
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Joyce Garner Tackles RMC With Faith & Determination

Joyce was diagnosed with renal medullary carcinoma (RMC) at the age of 43. She lives in North Carolina with her son, DJ and daughter, Nevah. Joyce continues to have a positive outlook on life and is determined to beat this beast called RMC. As she states at the end of ...
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Feninna-Aikaterini Fights RMC

Written by her Mother, Lois Feninna lives in Volos, Greece with her parents, Marios and Lois and her younger brother, Filippos (Philip in English).  Prior to receiving the cancer diagnosis, Feninna was outgoing, friendly and very much into sports. I can see in her eyes that she is determined to ...
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RMC Advocacy through the 7th Annual Keepin’ It Renal Run/Walk 2020

This year because of COVID-19, the 7th Annual Keepin' It Renal Run/Walk was postponed due to the pandemic. We could not let COVID-19 prevent us from our advocacy efforts and decided to have a virtual walk/run on June 6, 2020. Having our event virtually allowed people around the world to ...
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7th Annual Keepin’ It Renal Run/Walk

The Chris "CJ" Johnson Foundation's 7th annual Keepin' It Renal Run/Walk scheduled for March 28, 2020 was postponed due to COVID-19 pandemic. We had to do the right thing and follow the directives of our local and state officials. Older adults and people of any age who have serious underlying ...
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7th Annual Keepin’ It Renal Run/Walk Postponed due to Coronavirus

The Coronavirus (COVID-19) knows no borders and has had a profound impact on the world. We, like many of you, are following CDC protocols and carefully following the news. In an effort to ensure the safety of our participants, volunteers, vendors, RMC patients and to comply with the directives of ...
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Black History Month

Black history is American history, however, observing Black History Month in February gives us a chance to be intentional about learning this particular topic. While it’s wonderful to recognize the contributions of Dr. Martin Luther King Jr. and Rosa Parks, there are many other connections we can make to the ...
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Nicola Casey Keeps Husband’s Memory Alive!

Our story. Firstly, my husband Ricky Casey - my very own hero. Also a Greater Manchester firefighter! Unfortunately, our story doesn’t have the fairytale ending that we imagined when we met the love of our lives. Ricky asked me to marry him in Spain, September 2017. I was the happiest ...
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RMC Connect Support Community

Chris "CJ" Johnson Foundation Inc. has partnered with Inspire and Kidney Cancer Association to launch the first and only support community specifically for RMC patients and their families. This is a platform where you can connect with others impacted by this aggressive form of kidney cancer. Even if you loss ...
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