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The Chris “CJ” Johnson Foundation Inc., established in 2013, is a 501 (c)3 non-profit charity organization based in Sugar Land, Texas. Our mission is to find a cure fo Renal Medullary Carcinoma (RMC) worldwide through awareness, education, and research. Our primary focus is on individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for this rare and aggressive form of kidney cancer. In addition, the foundation offers emotional, spiritual and financial support to individuals diagnosed with RMC, and donate funds annually to The University of Texas MD Anderson Cancer Center to advance RMC research.

Our vision is to establish partnerships with primary care physicians, urology specialists, oncologist, hospitals, news media, legislators and community based organizations. Collaborative multi-institutional efforts are needed to better understand the biology of RMC. Heightened awareness may potentially enable individuals with SCT to better understand the importance of pursuing early diagnostic testing.

WHAT IS OUR NEXT STEP?

There are many foundations and medical facilities conducting research on breast cancer, lung cancer, colon cancer, etc., but very little on kidney cancer and specifically RMC.  There is a need to increase awareness in areas with high prevalence of sickle cell trait and other sickle blood disorders. We are advocating for a CHANGE.  It is our desire that individuals with sickle cell trait are informed of the potential risk of RMC.  It would be appropriate for individuals that are trait carriers and have persistent or recurrent renal symptoms to have radiological studies (CT Scan) and a comprehensive urinalysis.  Getting the word out is the greatest gift that I can give to my son.

We must work together to support the researchers, medical professionals, advocates and organizations dedicated to treating and curing this disease. To honor the memory of the loved ones that we have lost or that are fighting for their life, let us drive progress to enhance cancer prevention, detection and treatment.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

Unconscious Bias Campaign

Unconscious biases are learned stereotypes that are automatic, unintentional, deeply ingrained, universal, and able to influence behavior When Chris Johnson was formulating his vision for the Chris "CJ" Johnson Foundation Inc., he did not want to be perceived as a cancer patient, or as a victim, or pitied in any ...
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Joyce Garner Tackles RMC With Faith & Determination

Joyce was diagnosed with renal medullary carcinoma (RMC) at the age of 43. She lives in North Carolina with her son, DJ and daughter, Nevah. Joyce continues to have a positive outlook on life and is determined to beat this beast called RMC. As she states at the end of ...
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Feninna-Aikaterini Fights RMC

Written by her Mother, Lois Feninna lives in Volos, Greece with her parents, Marios and Lois and her younger brother, Filippos (Philip in English).  Prior to receiving the cancer diagnosis, Feninna was outgoing, friendly and very much into sports. I can see in her eyes that she is determined to ...
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RMC Advocacy through the 7th Annual Keepin’ It Renal Run/Walk 2020

This year because of COVID-19, the 7th Annual Keepin' It Renal Run/Walk was postponed due to the pandemic. We could not let COVID-19 prevent us from our advocacy efforts and decided to have a virtual walk/run on June 6, 2020. Having our event virtually allowed people around the world to ...
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7th Annual Keepin’ It Renal Run/Walk

The Chris "CJ" Johnson Foundation's 7th annual Keepin' It Renal Run/Walk scheduled for March 28, 2020 was postponed due to COVID-19 pandemic. We had to do the right thing and follow the directives of our local and state officials. Older adults and people of any age who have serious underlying ...
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7th Annual Keepin’ It Renal Run/Walk Postponed due to Coronavirus

The Coronavirus (COVID-19) knows no borders and has had a profound impact on the world. We, like many of you, are following CDC protocols and carefully following the news. In an effort to ensure the safety of our participants, volunteers, vendors, RMC patients and to comply with the directives of ...
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Black History Month

Black history is American history, however, observing Black History Month in February gives us a chance to be intentional about learning this particular topic. While it’s wonderful to recognize the contributions of Dr. Martin Luther King Jr. and Rosa Parks, there are many other connections we can make to the ...
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Nicola Casey Keeps Husband’s Memory Alive!

Our story. Firstly, my husband Ricky Casey - my very own hero. Also a Greater Manchester firefighter! Unfortunately, our story doesn’t have the fairytale ending that we imagined when we met the love of our lives. Ricky asked me to marry him in Spain, September 2017. I was the happiest ...
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RMC Connect Support Community

Chris "CJ" Johnson Foundation Inc. has partnered with Inspire and Kidney Cancer Association to launch the first and only support community specifically for RMC patients and their families. This is a platform where you can connect with others impacted by this aggressive form of kidney cancer. Even if you loss ...
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7th Annual Keepin’ It Renal Run/Walk

RENAL MEDULLARY CARCINOMA (RMC) AWARENESS The Chris "CJ" Johnson Foundation, Inc. is hosting their 7th Annual Keepin' It Renal Run/Walk on March 28th, 2020 at Sugar Land Memorial Park. (Large Pavilion) The park is located at 15300 University Blvd, Sugar Land, Texas 77479. You may check in starting at 0715 ...
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