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The Chris “CJ” Johnson Foundation Inc., was established in 2013, by Ritchie Johnson in memory of her son, Chris, who passed away in 2012. This foundation is a 501(c)3 non-profit charity organization based in Sugar Land, Texas. The primary focus of the foundation is to identify individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer. We offer programs that heighten awareness, educate and promote advocacy to increase public understanding, and ultimately a cure for RMC. Additionally, the foundation donates annually to University of Texas MD Anderson Cancer Center located in Houston, Texas to advance RMC research.

Our mission is to be a global community dedicated to creating awareness and alleviating healthcare disparities for individuals diagnosed with RMC through advocacy, education and research. Ultimately, all persons affected with RMC will have equal access to institutions that are leaders in cutting-edge research.

Our vision is to eliminate healthcare disparities and find a cure for renal medullary carcinoma (RMC)

WHAT IS OUR NEXT STEP?

We are advocating for a CHANGE.

There is a need to increase awareness in communities with a high prevalence of sickle cell trait and other sickle blood disorders. We must work together and with support from our state and Congress, we can and should eliminate healthcare disparities. Dr. Nizar Tannir, world-renowned physician at UT MD Anderson Cancer Center, eloquently stated, “This under-appreciation of the true prevalence of RMC is an example of healthcare disparity. This is why we need to double our efforts to help the RMC community.”

We must drive processes to end healthcare disparities and to enhance cancer prevention, detection, and treatment programs. The lives of RMC patients matters and they deserve to receive quality care.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W. Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

RMC Connect Support Community

Chris "CJ" Johnson Foundation Inc. has partnered with Inspire and Kidney Cancer Association to launch the first and only support community specifically for RMC patients and their families. This is a platform where you can connect with others impacted by this aggressive form of kidney cancer. Even if you loss ...
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7th Annual Keepin’ It Renal Run/Walk

RENAL MEDULLARY CARCINOMA (RMC) AWARENESS The Chris "CJ" Johnson Foundation, Inc. is hosting their 7th Annual Keepin' It Renal Run/Walk on March 28th, 2020 at Sugar Land Memorial Park. (Large Pavilion) The park is located at 15300 University Blvd, Sugar Land, Texas 77479. You may check in starting at 0715 ...
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Real Story by Bernard Hsu

Dr. Bernard Hsu, is a very popular You tuber who happened to attend the 2017 Kidney Cancer Association Symposium in Miami. He attended the presentation where Dr. Pavlos Msaouel described the model of how RMC happens. At the time of the presentation, Dr. P. Msaouel was Chief Fellow, Hematology/Oncology at ...
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Bardolph J. McConnell III

Bardolph J. McConnell III Bardolph "Bardy" J. McConnell III passed away November 14, 2019 in Portland. He was 48 years old. Bardy was born on February 22, 1977 to Bardolph J. McConnell Jr. and Mary Graham. Throughout his life he worked for various companies. If you knew Bardy, you knew ...
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National Organization for Rare Diseases (NORD)

We are so excited that renal medullary carcinoma (RMC) is listed with NORD as a rare disease. A special thank you to Dr. Msaouel for writing the report. Please see attached link. https://rarediseases.org/rare-diseases/renal-medullary-carcinoma/ The Chris "CJ" Johnson Foundation Inc., is listed as a resource on NORD ...
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Ritchie Johnson interviews with Voyage Magazine

Meet Ritchie Johnson of Chris “CJ” Johnson Foundation in Southwest of Houston A special thank you to the staff at Voyage Houston Magazine for allowing me to share my journey with my son, Chris. Today we’d like to introduce you to Ritchie Johnson. Ritchie, please share your story with us ...
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Update on the 6th Annual Keepin’ It Renal Run/Walk

We had a beautiful morning on March 23, 2019 to honor Chris Johnson, Byron Nash, Jerrod Rogers, Shawniece Wilmore, David Anderson, Joshua Seque, Joshua Nolan, Rekita Powell, Conroy Smith, Aniksha Patel, Holly Salisbury, Matthew Pennington, Sandra Prevost, Rahsohn Wali Jr, Dawud Potak-Gibbs, Rhianna Ferguson and so many more that fought ...
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Mother Turns Pain Into Purpose

Pain into purpose: Mother who lost adult son to cancer starts awareness foundation POSTED 11:31 AM, MARCH 21, 2019, BY WEB STAFF, UPDATED AT 10:35AM, MARCH 22, 2019 https://cw39.com/2019/03/21/pain-into-purpose-mother-who-lost-adult-son-to-cancer-sickle-cell-starts-awareness-foundation/ Ritchie Johnson, President/Founder Chris Johnson Foundation with Sherron Melton, Achor CW39 and Maria Sotolongo, Meteorologist CW39 ...
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Rhianna Ferguson

Rhianna Ferguson was 26 when she died of a rare type of kidney cancer called renal medullary carcinoma – doctors removed her kidney to try and beat the disease but it spread to her spine Heart-breaking tributes have flooded in for a mother who died from cancer after a two-year ...
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African Sickle Cell News & World Report

Ritchie Johnson, President and Founder of Chris "CJ" Johnson Foundation was featured in the African Sickle Cell News & World Report, October-December 2018 edition. Please click on the link below to read the articles. Sickle Cell News ...
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