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The Chris “CJ” Johnson Foundation Inc., established in 2013, is a 501 (c)3 non-profit charity organization based in Sugar Land, Texas. Our mission is to find a cure fo Renal Medullary Carcinoma (RMC) worldwide through awareness, education, and research. Our primary focus is on individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for this rare and aggressive form of kidney cancer. In addition, the foundation offers emotional, spiritual and financial support to individuals diagnosed with RMC, and donate funds annually to The University of Texas MD Anderson Cancer Center to advance RMC research.

Our vision is to establish partnerships with primary care physicians, urology specialists, oncologist, hospitals, news media, legislators and community based organizations. Collaborative multi-institutional efforts are needed to better understand the biology of RMC. Heightened awareness may potentially enable individuals with SCT to better understand the importance of pursuing early diagnostic testing.

WHAT IS OUR NEXT STEP?

There are many foundations and medical facilities conducting research on breast cancer, lung cancer, colon cancer, etc., but very little on kidney cancer and specifically RMC.  There is a need to increase awareness in areas with high prevalence of sickle cell trait and other sickle blood disorders. We are advocating for a CHANGE.  It is our desire that individuals with sickle cell trait are informed of the potential risk of RMC.  It would be appropriate for individuals that are trait carriers and have persistent or recurrent renal symptoms to have radiological studies (CT Scan) and a comprehensive urinalysis.  Getting the word out is the greatest gift that I can give to my son.

We must work together to support the researchers, medical professionals, advocates and organizations dedicated to treating and curing this disease. To honor the memory of the loved ones that we have lost or that are fighting for their life, let us drive progress to enhance cancer prevention, detection and treatment.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

Luis Nunez Diagnosed with RMC

My name is Luis Nunez. I was diagnosed with RMC on September 2015 at the age of 28. I have two boys, a 10 and 12 year old. I am married and we live in Jacksonville, FL. I have been getting chemotherapy or some type of treatment every two to ...
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Dawud “Dave” Potak-Gibbs

Dawud “Dave” L. Potak-Gibbs left this world on April 21, 2018 with his wife Laura and daughter Summer by his side at home. Dave bravely fought Renal Medullary Carcinoma (RMC) for two years and inspired many with his strength and optimism. Born on February 7, 1983 in Philadelphia, Dave graduated ...
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5th Annual Keepin’ It Renal Run/Walk Update

On March 24, 2018, over 200 warriors hit the track in Sugar Land Texas as advocates for Renal Medullary Carcinoma. Our speakers from MD Anderson; Drs. Tannir, Dr. Masaouel and Zita Lim gave an update on RMC research. They did a phenomenal job. My grandson, Marc Johnson II did an ...
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Brian Jimenez

Brian, 23 was the son of Raymond and Gina Mary Jimenez and the oldest of three siblings. He lived in Perth Amboy, New Jersey. Brian fought a hard battle against RMC, an extremely rare and aggressive cancer for two years. Prior to his diagnosis in January 2016 he was working ...
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Dr. Nizar Tannir – Update on RMC

Dr. Tannir is Professor of the Genitourinary Medical Oncology Department at MD Anderson Medical Center in Houston Texas. We are constantly reminding ourselves of the urgency of the work we do to find a cure for RMC. There is now hope for patients and families who are facing RMC. Your ...
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Highlights of our 4th Annual Keepin’ It Renal 5K Fun Run/Walk

On March 25, 2017, over 200 warriors hit the track as advocates for Renal Medullary Carcinoma.  Our event would not have been successful without our generous sponsors, donors, participants, vendors and volunteers. We appreciate each and everyone of you.  This was the best event thus far.  A special thank you to ...
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Fish City Grill – June 6, 2017

Fish City Grill in Sugar Land, Texas will be sponsoring a fundraiser for the Chris "CJ" Johnson Foundation, Inc. for the 4th year in a row. This event will be Tuesday, June 6, 2017 from 11:00 am until 10:00 pm. Someone from the foundation will be present throughout the day ...
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Rahsohn Wali, Jr.

Rahsohn Wali, Jr., 11, of Hamden Connecticut passed away April 27, 2017 in the Cleveland Clinic in Ohio after a courageous battle with RMC. Sohnny (as he was affectionately called) was termed "One in a million" by his 4th grade teacher. He always challenged himself to accomplish more difficult math ...
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Dawud – Gives “HOPE” to Others Diagnosed with RMC

Dawud, age 33, was diagnosed with RMC April 2016 after two episodes of hematuria, with metastasis to the liver, lungs and bones. From April until September, he received chemotherapy treatments which helped to shrink the tumors. But his blood counts couldn't tolerate a second round of chemo. In November, after ...
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JERROD PAUL ROGERS

Jerrod Paul Rogers was born on May 21, 1991 in Hutchinson , Kansas. He had a difficult childhood and was placed in foster care at the age of 7. Jerrod and his sister lived in several foster homes before meeting their forever family and being adopted in 2006. In late ...
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