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The Chris “CJ” Johnson Foundation Inc., was established in 2013, by Ritchie Johnson in memory of her son, Chris, who passed away in 2012. This foundation is a 501(c)3 non-profit charity organization based in Sugar Land, Texas. The primary focus of the foundation is to identify individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer. We offer programs that heighten awareness, educate and promote advocacy to increase public understanding, and ultimately a cure for RMC. Additionally, the foundation donates annually to University of Texas MD Anderson Cancer Center located in Houston, Texas to advance RMC research.

Our mission is to be a global community dedicated to creating awareness and alleviating healthcare disparities for individuals diagnosed with RMC through advocacy, education and research. Ultimately, all persons affected with RMC will have equal access to institutions that are leaders in cutting-edge research.

Our vision is to eliminate healthcare disparities and find a cure for renal medullary carcinoma (RMC)


We are advocating for a CHANGE.

There is a need to increase awareness in communities with a high prevalence of sickle cell trait and other sickle blood disorders. We must work together and with support from our state and Congress, we can and should eliminate healthcare disparities. Dr. Nizar Tannir, world-renowned physician at UT MD Anderson Cancer Center, eloquently stated, “This under-appreciation of the true prevalence of RMC is an example of healthcare disparity. This is why we need to double our efforts to help the RMC community.”

We must drive processes to end healthcare disparities and to enhance cancer prevention, detection, and treatment programs. The lives of RMC patients matters and they deserve to receive quality care.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W. Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center


Marlene Kravitz Shares Her Story About Losing Her Son To RMC

Matthew Pennington, Age 37, lived in Albuquerque, New Mexico. Matthew was diagnosed with RMC in January of 2016 and passed away three months later.  His mother, Marlene has consented to sharing her story with other parents who may be faced with the same or possibly different catastrophic illness such as ...
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RMC Clinical Trials Available at MD Anderson Cancer Center

Dr. Msaouel has prepared a trial schema for physicians to know the scheduling of the trial testing the combination of the proteasome inhibitor ixazomib (targeted therapy) with gemcitabine and doxorubicin. The links for the trial are:https://clinicaltrials.gov/ct2/show/NCT03587662  and https://www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials/clinical-trials-index/clinical-trials-detail.ID2018-0065.html MD Anderson now has two trials specifically designed for patients with RMC ...
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Dr. Pavlos Msaouel, MD, PhD

Congratulations to Pavlos Msaouel, MD, PhD on your new appointment as Assistant Professor, Department of Genitourinary Medical Oncology, MD Anderson Cancer Center. Dr. Msaouel received his medical degree from the University of Athens and has committed a portion of his time to researching Renal Medullary Carcinoma (RMC). He has graciously ...
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Jesse Johnson

Jesse was in and out of the emergency room for approximately two months due to pain and blood in his urine. A CT Scan was done in March 2017, which revealed a mass on his kidney due to an infection. He was discharged home with antibiotics. In April, he presented ...
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“Mama I’m Tired” by Ritchie W Johnson

Thirty-nine years into her nursing career, Ritchie Johnson was making plans to retire soon.  She dreamed of relaxing and traveling around the world. Until her youngest son, Chris, was diagnosed with a rare, aggressive, and fatal kidney cancer, known as Renal Medullary Carcinoma (RMC) Ritchie placed her nursing career on ...
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Luis Nunez Diagnosed with RMC

My name is Luis Nunez. I was diagnosed with RMC on September 2015 at the age of 28. I have two boys, a 10 and 12 year old. I am married and we live in Jacksonville, FL. I have been getting chemotherapy or some type of treatment every two to ...
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Dawud “Dave” Potak-Gibbs

Dawud “Dave” L. Potak-Gibbs left this world on April 21, 2018 with his wife Laura and daughter Summer by his side at home. Dave bravely fought Renal Medullary Carcinoma (RMC) for two years and inspired many with his strength and optimism. Born on February 7, 1983 in Philadelphia, Dave graduated ...
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5th Annual Keepin’ It Renal Run/Walk Update

On March 24, 2018, over 200 warriors hit the track in Sugar Land Texas as advocates for Renal Medullary Carcinoma. Our speakers from MD Anderson; Drs. Tannir, Dr. Masaouel and Zita Lim gave an update on RMC research. They did a phenomenal job. My grandson, Marc Johnson II did an ...
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Brian Jimenez

Brian, 23 was the son of Raymond and Gina Mary Jimenez and the oldest of three siblings. He lived in Perth Amboy, New Jersey. Brian fought a hard battle against RMC, an extremely rare and aggressive cancer for two years. Prior to his diagnosis in January 2016 he was working ...
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Dr. Nizar Tannir – Update on RMC

Dr. Tannir is Professor of the Genitourinary Medical Oncology Department at MD Anderson Medical Center in Houston Texas. We are constantly reminding ourselves of the urgency of the work we do to find a cure for RMC. There is now hope for patients and families who are facing RMC. Your ...
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