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The Chris “CJ” Johnson Foundation Inc., was established in 2013, by Ritchie Johnson in memory of her son, Chris, who passed away in 2012. This foundation is a 501(c)3 non-profit charity organization based in Sugar Land, Texas. The primary focus of the foundation is to identify individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer. We offer programs that heighten awareness, educate and promote advocacy to increase public understanding, and ultimately a cure for RMC. Additionally, the foundation donates annually to University of Texas MD Anderson Cancer Center located in Houston, Texas to advance RMC research.

Our mission is to be a global community dedicated to creating awareness and alleviating healthcare disparities for individuals diagnosed with RMC through advocacy, education and research. Ultimately, all persons affected with RMC will have equal access to institutions that are leaders in cutting-edge research.

Our vision is to eliminate healthcare disparities and find a cure for renal medullary carcinoma (RMC)

WHAT IS OUR NEXT STEP?

We are advocating for a CHANGE.

There is a need to increase awareness in communities with a high prevalence of sickle cell trait and other sickle blood disorders. We must work together and with support from our state and Congress, we can and should eliminate healthcare disparities. Dr. Nizar Tannir, world-renowned physician at UT MD Anderson Cancer Center, eloquently stated, “This under-appreciation of the true prevalence of RMC is an example of healthcare disparity. This is why we need to double our efforts to help the RMC community.”

We must drive processes to end healthcare disparities and to enhance cancer prevention, detection, and treatment programs. The lives of RMC patients matters and they deserve to receive quality care.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W. Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

Dr. Nizar Tannir – Update on RMC

Dr. Tannir is Professor of the Genitourinary Medical Oncology Department at MD Anderson Medical Center in Houston Texas. We are constantly reminding ourselves of the urgency of the work we do to find a cure for RMC. There is now hope for patients and families who are facing RMC. Your ...
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Highlights of our 4th Annual Keepin’ It Renal 5K Fun Run/Walk

On March 25, 2017, over 200 warriors hit the track as advocates for Renal Medullary Carcinoma.  Our event would not have been successful without our generous sponsors, donors, participants, vendors and volunteers. We appreciate each and everyone of you.  This was the best event thus far.  A special thank you to ...
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Fish City Grill – June 6, 2017

Fish City Grill in Sugar Land, Texas will be sponsoring a fundraiser for the Chris "CJ" Johnson Foundation, Inc. for the 4th year in a row. This event will be Tuesday, June 6, 2017 from 11:00 am until 10:00 pm. Someone from the foundation will be present throughout the day ...
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Rahsohn Wali, Jr.

Rahsohn Wali, Jr., 11, of Hamden Connecticut passed away April 27, 2017 in the Cleveland Clinic in Ohio after a courageous battle with RMC. Sohnny (as he was affectionately called) was termed "One in a million" by his 4th grade teacher. He always challenged himself to accomplish more difficult math ...
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Dawud – Gives “HOPE” to Others Diagnosed with RMC

Dawud, age 33, was diagnosed with RMC April 2016 after two episodes of hematuria, with metastasis to the liver, lungs and bones. From April until September, he received chemotherapy treatments which helped to shrink the tumors. But his blood counts couldn't tolerate a second round of chemo. In November, after ...
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JERROD PAUL ROGERS

Jerrod Paul Rogers was born on May 21, 1991 in Hutchinson , Kansas. He had a difficult childhood and was placed in foster care at the age of 7. Jerrod and his sister lived in several foster homes before meeting their forever family and being adopted in 2006. In late ...
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Successful 6th Annual Toy Drive

 The Chris CJ Johnson Foundation Inc. and Raw Impact Motorcycle Club had the pleasure of attending the 6th Annual Heart of the Kids Social Services Christmas Toy Drive on December 15, 2016. Because of our many supporters with generous hearts, we were able to make Christmas magic to over 60 ...
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Fish City Grill – Sugar Land Texas – Gives Back To The Community

A special thank you to Randall and Donovan for hosting the Chris "CJ" Johnson Foundations Inc. as the charity of choice for December. We are so honored to have so many wonderful supporters to join us for the fundraiser on December 6th. As many of you know, Fish City Grill ...
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4th Annual Keepin’ it Renal Run/Walk

5K FUN RUN / 3-MILE WALK Information WHEN: Saturday, March 25, 2017. Registration opens at 7:15 a.m. and race starts at 8:30 a.m. WHERE: Sugar Land Memorial Park – Large Pavilion, 15300 University Blvd., Sugar Land Texas 77479 The race will end at the Pavilion with refreshments. ENTRY FEE: $25/person ...
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Aniksha Patel

Aniksha Patel, 24, of Manchester, England passed away on December 1, 2016 after a hard fought battle against Renal Medullary Carcinoma (RMC). Aniksha's journey touched the hearts of so many. In March 2013 she was diagnosed.  She went through many chemotherapy treatments and surgeries.  In February 2014 she wrote this: ...
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