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The Chris “CJ” Johnson Foundation Inc., established in 2013, is a 501 (c)3 non-profit charity organization based in Sugar Land, Texas. Our mission is to find a cure fo Renal Medullary Carcinoma (RMC) worldwide through awareness, education, and research. Our primary focus is on individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for this rare and aggressive form of kidney cancer. In addition, the foundation offers emotional, spiritual and financial support to individuals diagnosed with RMC, and donate funds annually to The University of Texas MD Anderson Cancer Center to advance RMC research.

Our vision is to establish partnerships with primary care physicians, urology specialists, oncologist, hospitals, news media, legislators and community based organizations. Collaborative multi-institutional efforts are needed to better understand the biology of RMC. Heightened awareness may potentially enable individuals with SCT to better understand the importance of pursuing early diagnostic testing.

WHAT IS OUR NEXT STEP?

There are many foundations and medical facilities conducting research on breast cancer, lung cancer, colon cancer, etc., but very little on kidney cancer and specifically RMC.  There is a need to increase awareness in areas with high prevalence of sickle cell trait and other sickle blood disorders. We are advocating for a CHANGE.  It is our desire that individuals with sickle cell trait are informed of the potential risk of RMC.  It would be appropriate for individuals that are trait carriers and have persistent or recurrent renal symptoms to have radiological studies (CT Scan) and a comprehensive urinalysis.  Getting the word out is the greatest gift that I can give to my son.

We must work together to support the researchers, medical professionals, advocates and organizations dedicated to treating and curing this disease. To honor the memory of the loved ones that we have lost or that are fighting for their life, let us drive progress to enhance cancer prevention, detection and treatment.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

Fish City Grill – June 6, 2017

Fish City Grill in Sugar Land, Texas will be sponsoring a fundraiser for the Chris "CJ" Johnson Foundation, Inc. for the 4th year in a row. This event will be Tuesday, June 6, 2017 from 11:00 am until 10:00 pm. Someone from the foundation will be present throughout the day ...
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Rahsohn Wali, Jr.

Rahsohn Wali, Jr., 11, of Hamden Connecticut passed away April 27, 2017 in the Cleveland Clinic in Ohio after a courageous battle with RMC. Sohnny (as he was affectionately called) was termed "One in a million" by his 4th grade teacher. He always challenged himself to accomplish more difficult math ...
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Dawud – Gives “HOPE” to Others Diagnosed with RMC

Dawud, age 33, was diagnosed with RMC April 2016 after two episodes of hematuria, with metastasis to the liver, lungs and bones. From April until September, he received chemotherapy treatments which helped to shrink the tumors. But his blood counts couldn't tolerate a second round of chemo. In November, after ...
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JERROD PAUL ROGERS

Jerrod Paul Rogers was born on May 21, 1991 in Hutchinson , Kansas. He had a difficult childhood and was placed in foster care at the age of 7. Jerrod and his sister lived in several foster homes before meeting their forever family and being adopted in 2006. In late ...
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Successful 6th Annual Toy Drive

 The Chris CJ Johnson Foundation Inc. and Raw Impact Motorcycle Club had the pleasure of attending the 6th Annual Heart of the Kids Social Services Christmas Toy Drive on December 15, 2016. Because of our many supporters with generous hearts, we were able to make Christmas magic to over 60 ...
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Fish City Grill – Sugar Land Texas – Gives Back To The Community

A special thank you to Randall and Donovan for hosting the Chris "CJ" Johnson Foundations Inc. as the charity of choice for December. We are so honored to have so many wonderful supporters to join us for the fundraiser on December 6th. As many of you know, Fish City Grill ...
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4th Annual Keepin’ it Renal Run/Walk

5K FUN RUN / 3-MILE WALK Information WHEN: Saturday, March 25, 2017. Registration opens at 7:15 a.m. and race starts at 8:30 a.m. WHERE: Sugar Land Memorial Park – Large Pavilion, 15300 University Blvd., Sugar Land Texas 77479 The race will end at the Pavilion with refreshments. ENTRY FEE: $25/person ...
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Aniksha Patel

Aniksha Patel, 24, of Manchester, England passed away on December 1, 2016 after a hard fought battle against Renal Medullary Carcinoma (RMC). Aniksha's journey touched the hearts of so many. In March 2013 she was diagnosed.  She went through many chemotherapy treatments and surgeries.  In February 2014 she wrote this: ...
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Fish City Grill Sugar Land – December 6, 2016

Please join us at Fish City Grill, located at 15980 City Walk, Sugar Land, Texas on December 6, 2016.  For three years in a row, they have hosted a fundraiser for the Chris CJ Johnson Foundation, Inc.  Fifteen percent of the total sales will be donated to the foundation.  The ...
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Sixth Annual Christmas Toy Drive Starting Now through December 9, 2016

The Chris "CJ" Johnson Foundation, Inc., is pleased to announce that we are once again partnering with Heart of the KidsSocial Services, Inc. (HKSS)  for their 6th Annual Christmas Toy Drive.  HKSS is a Christian based, non-profit corporation, which places children that have been neglected, abandoned and abused into loving ...
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