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The Chris “CJ” Johnson Foundation Inc., was established in 2013, by Ritchie Johnson in memory of her son, Chris, who passed away in 2012. This foundation is a 501(c)3 non-profit charity organization based in Sugar Land, Texas. The primary focus of the foundation is to identify individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer. We offer programs that heighten awareness, educate and promote advocacy to increase public understanding, and ultimately a cure for RMC. Additionally, the foundation donates annually to University of Texas MD Anderson Cancer Center located in Houston, Texas to advance RMC research.

Our mission is to be a global community dedicated to creating awareness and alleviating healthcare disparities for individuals diagnosed with RMC through advocacy, education and research. Ultimately, all persons affected with RMC will have equal access to institutions that are leaders in cutting-edge research.

Our vision is to eliminate healthcare disparities and find a cure for renal medullary carcinoma (RMC)

WHAT IS OUR NEXT STEP?

We are advocating for a CHANGE.

There is a need to increase awareness in communities with a high prevalence of sickle cell trait and other sickle blood disorders. We must work together and with support from our state and Congress, we can and should eliminate healthcare disparities. Dr. Nizar Tannir, world-renowned physician at UT MD Anderson Cancer Center, eloquently stated, “This under-appreciation of the true prevalence of RMC is an example of healthcare disparity. This is why we need to double our efforts to help the RMC community.”

We must drive processes to end healthcare disparities and to enhance cancer prevention, detection, and treatment programs. The lives of RMC patients matters and they deserve to receive quality care.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W. Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

Sixth Annual Christmas Toy Drive Starting Now through December 9, 2016

The Chris "CJ" Johnson Foundation, Inc., is pleased to announce that we are once again partnering with Heart of the KidsSocial Services, Inc. (HKSS)  for their 6th Annual Christmas Toy Drive.  HKSS is a Christian based, non-profit corporation, which places children that have been neglected, abandoned and abused into loving ...
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CONROY GEARPAUL SMITH

Conroy Gearpaul Smith was born in Jamaica to Roma Crockwell and Anthony Smith. He was the eldest of three siblings.  At the age of 5, Conroy and his family moved to Bermuda and in 2012 Conroy and his mother moved to Nottingham England to be near his sister Shaunelle. Conroy ...
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ACS CAN Leadership Summit & Lobby Day

I, along with 610 volunteers attended the ACS CAN Leadership Summit & Lobby Day in Washington, D.C. on September 11-14, 2016. There was representation from 50 states. In 2016, cancer will kill 8.2 million people;  5 million of those will occur in low and middle income countries around the world ...
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Matthew Pennington

Matthew went by many names. He was called Teo by his family and Penni by his friends. He was the second son of Marlene Costales Kravitz and E. Justin Pennington. He was born 24 Nov 1978 and died 19 Mar 2016. He was married to Marie Liu for a short ...
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SANDRA MARIE PREVOST

Sandra Marie Prevost was born on February 29, 1968 to Joseph Earl Prevost and Della Marie Prevost, whom preceded her in death. Sandra was diagnosed with Renal Medullary Carcinoma in April of 2015 and was called to be with her heavenly father 11 months after diagnosis. She fought a courageous ...
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Chris Johnson

Chris S. Johnson was born in Houston Texas to Charles and Ritchie Johnson on November 18, 1972. Chris was diagnosed with RMC in June 2011 and loss his battle 15 months after diagnosis.  Chris received most of his care in Sugar Land at MD Anderson Cancer Center under the guidance ...
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David Anderson

David W. Anderson was born in Newburgh, New York on December 29, 1973. David was diagnosed with RMC in June 2014.  David fought hard through this journey and never complained. He continued to run his land development company while continuing to spend time loving and enjoying his family and friends. David ...
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Our First Scholarship Recipient- Divinshia Jackson

The Chris CJ Johnson Foundation Inc. is proud to announce Divinshia Jackson as the first recipient of a $500.00 scholarship. Divinshia was inducted into the National Honor Society in December 2015 and is a 2016 graduate of BF Terry High School. As a young girl, Divinshia had the passion of ...
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Highlights of the 3rd Annual Keepin’ It Renal Run/Walk

This year's Annual Keepin' It Renal 5K Run/Walk that was held in Sugar Land Texas May 21, 2016 raised $8,631.95. Because of our supporters we were able to donate $3000.00 to MD Anderson Cancer Center to advance RMC Research; $500.00 Scholarship to Divinshia Jackson, a 2016 graduate of BF Terry ...
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William Guy Forbeck Research Foundation- Host 1st RMC Meeting

On April 21-23, 2016, the William Guy Forbeck Research Foundation supported the first focus group meeting on Renal Medullary Carcinoma (RMC) in Nashville Tennessee. The Forbeck Foundation supports collaborative work to advance the development of cures for cancer; particularly rare cancers that affect children. To enhance knowledge about RMC, Drs. Rathmell ...
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