Milton D. Wade Advocates for Sickle Cell Disease and Sickle Cell Trait Legislation in Emotion New York City Health Committee Hearing. By Ritchie Johnson
- September 20, 2023
New Your City, (September 20, 2023) – In a poignant and heartfelt address during today’s city Health Subcommittee hearing in New York, Milton D. Wade, a resident of New Jersey, passionately championed the cause of sickle cell trait and sickle cell disease legislation. Milton, a carrier of this inherited blood disorder, has devoted his life to ensuring that Proposal 968-A becomes an integral part of the New York City code. His unwavering commitment to this cause was born from a deeply personal experience: the loss of his son, Micah, who bravely battled renal medullary carcinoma before succumbing to the disease in September of 2021.
The congressional hearing, centered around sickle cell disease legislation was informed of the importance of including sickle cell trait. The dire need for comprehensive data from the city’s Health & Hospital Corporation, brought together a diverse array of speakers. Among them Yadira Navarro from the New York Blood Center, who shared her insights into the importance of collecting data related to sickle cell trait and sickle cell disease. Representatives from various organizations dedicated to sickle cell and blood disorders also made compelling contributions. They emphasized the urgency of increasing public and physician awareness regarding sickle cell trait.
Councilwoman Mercedes Narcisse delivered a powerful revelation during her address – she, too, is a trait carrier. This disclosure underscores the significance of raising awareness and promoting education about sickle cell trait among the general public, as well as within the medical community.
The valuable insights and data shared during this hearing will play a pivotal role in refining Proposal 968-A to better serve those affected by sickle cell trait and disease. Milton’s passionate advocacy and the collective dedication of all the speakers have brought renewed hope for progress as it relates to sickle cell trait.
As this legislation moves forward, it is hoped that Micah’s memory will serve as a powerful reminder of the urgent need for action. The tireless efforts of individuals like Milton continue to inspire us all to strive for a future where sickle cell trait is better understood.