OUR HEROES

Julia Lea Hayes, 46, of Fishers, Indiana, passed away on August 14, 2024. Born in Detroit, Michigan, to Ronald and Linda West, Julia’s life was marked by dedication, love, and resilience.

A proud graduate of Carmel High School, Julia was a standout athlete, excelling on the swim team and as a member of the Carmel Swim Club. Her prowess in the water earned her a championship title and a swim scholarship to Indiana University, where she pursued a bachelor’s degree in communications.

Julia’s passion for learning continued throughout her life. She furthered her education to become a realtor, a career she embraced fully. Her commitment to her work was matched only by her dedication to her children. Julia was their biggest cheerleader, attending their athletic events and supporting their endeavors with unwavering enthusiasm, even in the face of illness. She ensured that her presence was felt, either by attending in person or arranging for her participation in other ways.

A devoted member of Heartland Church in Fishers, Julia found joy and comfort in her faith community. She also cherished the time spent sailing and boating in Michigan with her father, a beloved tradition that brought her peace and happiness.

Julia leaves behind her loving parents, Linda and Ronald West; her cherished children, Aaliyah Hayes, Malik Hayes, and Jayce West; and her dear sister, Shelley West. Her legacy of love, strength, and perseverance will continue to inspire those who knew and loved her.

Valerie Ann Smith, age 39 of Meadows of Dan, passed away peacefully at her home on June 20, 2024 surrounded by family.

After months of fighting, I have finally won my battle against Renal Medullary Carcinoma and now sit at the feet of Jesus! I have been blessed to live my final 4 years in an old farmhouse in Meadows of Dan with my best friend and devoted husband, Denny Kelvin Smith, Jr, and our youngest children, Kijah Rothrock, Denny Kelvin Smith III, and Thomas Finley Smith. My oldest daughter, Acacia Roberts, has flown the nest and resides in East Bend, NC. I am joining my Mamaw Virginia, and I leave on earth my parents, Thomas Rose and Stephanie Steelman; siblings, Katlyn Keaton, Charity Rose, Holly Davenport, and Jamie Steelman; remaining grandparents, aunts, uncles, and the rest of my family.

Between meeting the locals and enjoying this beautiful area, my time in Meadows of Dan has been abundantly blessed! Some of the most compassionate people live here and are part of what makes this small town so special and unique. I finally met my tribe of Moms who forever changed my life, and I found my church home, Grace Baptist Church in Stuart, VA.

Death at 39 years of age was never in my 5 or 10 year plan, or even my 15 or 20 year plan. Especially not with 3 babies still at home, in the best years of my marriage and at the height of my career. This whole ordeal has taken so much from my family, but it has taught me some very valuable insights. One of the most important lessons this journey has taught me is that your plans and God’s plans rarely align. So, remember when you’re making your plans, they really are tentative. Focus on not holding grudges because holding a grudge is only putting you in a sour mood. When is the last time you really let your friends know you appreciate them and invested your time in them? Your life would look a lot different without them in it, you know. If you still have your spouse with you earth side, spend time with them. Imagine sitting in the shoes of my husband who wishes he had just a bit more time with his wife and children together.

Spend time with your kids. Put your phone down, pause your work, and give them a hug. Tell them how proud you are of them. Love all over them and invest in quality time with them. Go out regularly, see and experience things and sites with them. They need you.

Most of all, I encourage you, if you haven’t already, find a church home. I struggled for years to find somewhere that felt like home. I needed somewhere that I could wear what I was comfortable wearing. I needed a church that would actually open the Bible and read and teach from it. I needed a Pastor, not a preacher. I needed a church family. If you’re reading this, there’s at least one chair open now in the front row at Grace Baptist Church. It was my favorite place to sit. There are other seats too, but you’re welcome to find your way to Grace and use that one. You’ll feel right at home.

To all my friends and family, thank you. I hope to see you again! With all my love, Valerie Ann Smith In lieu of flowers, I ask that donations be made directly to The Chris Johnson Foundation, the only foundation dedicated solely to research and funding to fight the rare disease of Renal Medullary Carcinoma. Contributions may be sent by visiting https://chrisjohnsonfoundation.org/donations/.

Jonathan Harden, 33, of Fernandina Beach, Florida passed away at his home on April 25, 2024, surrounded by family. In December 2023, Jonathan was diagnosed with renal cell carcinoma, unclassified with medullary phenotype (RCCU-MP) which is a very rare subtype of RMC that occurs in people who do not carry any sickle hemoglobinopathies such as sickle cell trait.

Jonathan was born on October 2, 1990 to Jeffrey and Kristine Harden. He graduated from Eastport-South Manor Jr/Sr High School in 2008. He earned a degree in Criminology from The University of West Virginia in 2012 before finding his calling as an Air-Traffic Controller for the FAA. He is remembered for his big heart, passion for fitness, and devotion to his family. A dedicated fitness enthusiast, he found solace in weight-lifting and strength training, alongside his passions for golf, dirt bike racing, and video games. He enjoyed musicals and Disney movies, relished in culinary competitions like Guy Fieri’s Tournament of Champions on the Food Network and never missed an opportunity to tease his mother.

Jonathan leaves behind a legacy of love and laughter, forever etched in the hearts of his parents, Jeffrey and Kristine Harden, his brothers Joshua and Jason Harden, his nephews Benjamin Harden and niece Abigail Harden.  Jonathan’s spirit will forever shine bright in their hearts.

Edward Lee Perkins was born on January 14, 1983 to Charles Lee Perkins (deceased) and Ivory J. Perkins. Edward was a member of St. Alphonsus Liguori “Rock” Catholic Church where he was baptized on May 6, 1984 by Rev. Robert Wirth, C. S.s.R. Edward passed away on February 9, 2024 due to complications of renal medullary carcinoma (RMC).

SGT Perkins served the United States Army with honor and distinction. SGT Perkins served seven years in the active component while being stationed at Fort Reilly, Kansas. At the height of the pandemic, SGT Perkins continued his service to his country by transitioning into the United States Army Reserves, serving in the 307th Psychological Operations Company for the next four years.

Edward was a very comical person. he could make you laugh with an expression or a simple sentence. When he was young and the kids would put on a play, dance or sing for the family gatherings, Edward’s routine would be to imitate “Steve Erkle” of Family Matters. He would roll up his pant legs, pull up his pants, put on a pair of glasses and suspenders, bend his knees, make a Steve Erkle face and say, “did I do that?” Simply hilarious. The day prior to his death, three nurses from chemotherapy/radiation came to visit. As they were talking, Edward stated, “I wish I had more time.” Although his time on earth lasted 41 years, he accomplished more than some who have lived twice as long.

Edward leaves to cherish his memory; a devoted companion Yvonne Walter, His children, Edward, Lamont, Kaylynn, Kharlee, his mother, Ivory Perkins; Sisters and Brother, Latauyna, Charles (Michelle), Julia (Darius), Jennifer, Janet (Derrick) and other family members and friends.

Following a courageous battle with a very rare and aggressive kidney cancer, Renal Medullary Carcinoma (RMC), Justin Malik Coots, 23 , passed away Friday, February 9, 2024. Justin was born February 17, 2000, in Cedar Rapids, the son of Scott and Hollie (Janssen) Coots. He attended school in Vinton-Shellsburg, graduating in 2018, and then attended UNI. While at Vinton-Shellsburg, Justin participate in football and track. He was employed as a mechanic for Junge Ford, Hiawatha.

Justin was smart, witty, and passionate about the things most important to him. Justin’s love and knowledge of high-performance cars was shared with more than 71,000 TikTok followers. Chasing his love of cars led him to car shows where he met his girlfriend, Sami. Justin’s job as a mechanic allowed hi to do what he loved every day. In his final days, Justin continued to find joy doing another activity he loved, constructing Lego’s! Justin’s Star Wars “stormtrooper empire” greeted those who entered. Justin embraced all of his passions wholeheartedly and his love was immeasurable.

Left to cherish Justin’s memory are his parents, Scott and Hollie Coots; two sisters, Jade and Josie Coots. Grandparents, Aunts, Uncles, Cousins and a host of family and friends.

Carrin Agusta Stewart Davis was born November 19, 1975, in Houston, Texas. Carrin and her brother, Louie, grew up in a loving home with their parents.

Carrin graduated from Lamar High School and followed in her mother’s footsteps and attended Hampton University earning a business degree. She later continued her education, earning a Master’s of Science Degree in Human Resources from Houston Christian University, formerly known as Houston Baptist University.

Years later, she met the love of her life, Irvin “Jesus” Davis and was married in 2007. Four years later, a suprise was waiting for Jesus when he arrived home. A plant with a note sitting on the table, “Daddy, see you in 8 months. Eight months later, the light of their lives was born, Blair. She was the first in Carrin’s life. Together they baked, cooked, made after school trips to the park and secret shopping trips.

Carrin could be described as loving, gentle, and kind; always thinking of the needs of others and seeing the good, even in their mistakes. She could also be described as a fighter. Carrin was diagnosed with renal medullary carcinoma (RMC), and given a life expectancy of 3-6 months, but with her strength and determination, she was able to add an additional five years before going home to be with the Lord on August 7,2023.

To cherish her memory, Carrin is survived by her husband, mother, brother, her daughter, her stepson, niece, a host of cousins and friends. She was preceded in death by her father and both maternal and paternal grandparents.

Dr. Ana Miranda Maldonado was fearless and proud; she was a graceful poet, compassionate physician, and a warm and loving wife, mother, and friend. Ana’s life is one of resilience, pursuing education, forging her own path and creating a life filled with love and purpose.

Ana was born on November 8, 1978, in San Salvador, El Salvador to parents Ana Isabel and Julio Miranda. She was the younger sister brother Erick and Douglas. She honored and treasured her Salvadoran heritage, and it was a bedrock of the life she lived and shared with her husband Mario Maldonado, and their two sons – Nico and Tomas.

From a young age, Ana faced adversity that propelled her rapid maturity and nurtured her ferocious independence. When Ana was two years old, her father emigrated to Long Island, New York in search of work while Ana, her mother and two older brothers remained in El Salvador. Two years later, Ana and her siblings were hastily uprooted from their home in El Salvador to join their father in New York in search of refuge from civil war. Ana and her family made the undocumented journey to the United States and embarked on a path filled with uncertainty and hop for a better future.

In 2001, a year after completing her undergraduate studies at USC, Ana met Mario Maldonado, a man who would become her best friend, confidant and her biggest supporter. Ana was accepted to one of the country’s best medical schools – Stanford School of Medicine. Mario quickly learned how to support Ana through her long, taxing, yet rewarding journey as a medical student at Stanford and as a resident in internal medicine at the University of California, San Francisco.

Ana’s true calling in life was to practice medicine and to serve her patients. She began her career as an attending in San Mateo County’s Fair Oaks Community Clinic and in 2013 came to work for Kaiser Permanente. Her medical career in primary care was a testament to her unabashed love of science and healing and her dedication to helping the underserved and most vulnerable populations.

Ana’s Legacy as a mother will forever resonate in the hearts of two boys. She instilled in them values of compassion, resilience, a thirst for knowledge, a love for music, the arts, and fine food, that will continue to shape their lives and guide them toward their dreams. The depth of Ana’s love will continue to inspire her tow amazing, strong, and confident children as they navigate the world, keeping her spirit, strength and love alive in their hearts.

On July 7, 2023, after aa two-and-a-half-year battle with renal medullary carcinoma (RMC), an exceptionally rare and aggressive type of kidney cancer, Ana departed from this world, surrounded by love, emanating her unyielding spirit of pride, beauty, dignity, and love. Her legacy as a loving mother and remarkable individual will forever resonate in our hearts, inspiring us to navigate life with strength, grace confidence, and the enduring spirit of this incredible mother, wife, physician, friend and colleague.

Linda Amaka Osuorji was born on April 6, 1983 in Lagos, Nigeria to Jacob and Dorothy Osuorji. She migrated to the United States with her mother at the age of 3. Linda was true and pure hearted inside and out. She was a devout Christian and catholic. She took her faith and personal relationship with God seriously.She firmly believed in the will of Gad and never hesitated to thank God for her life, her family and the friends God put in her life.
She attended Enterprise High School in Redding California. She also attended Chico State University in California. She graduated with a bachelor’s degree in Psychology in 2005. She went further in her education and earned a master’s degree in Management from Saint Mary’s College in 2016.
Linda was very passionate about helping children transition into adulthood. This validated her decision and choice to pursue a career around that passion. She became a Youth and College Counselor. She worked as a Program Coordinator for Big Brothers and Big Sisters from 2008 to 2016. She mentored and assisted disadvantaged children. She helped children to attain college admissions and scholarships. Linda worked for BCS/YMCA of Central Bay Area as a Program Manager from 2017-2022. In this capacity, she continued to help her students through counseling, pairing them up with mentors, and helping them shape their academic and career choices. She was an advocate for the youth, educational attainment and career actualization.
All through her 18 months battle with renal medullary carcinoma (RMC), though very painful, she never wavered in her faith and strong will to live. She was very brave and strong until the end, encouraging those around her and helping others in treatment to focus on the small joys in life instead of the sad days spent inside.
Linda’s fight ended December 2022. She leaves behind a legacy of taking joy in the small things and loving her family and friends. I hope that together we will remember her beautiful smile, vibrant personality, enjoy every get together with family and friends, and mourn her memory with all the good times shared together with her.

Marcelle Dominique Poteau of Randolph, Massachusetts, passed away December 10, 2021 from complications of renal medullary carcinoma (RMC), at the young age of 37. Marcelle was born in Miragoane, Haiti, and is a graduate of Randolph High School, and the University of Massachusetts, Boston.

Marcelle had many talents and skills and was most recently building her empire as a licensed realtor. She is the beloved daughter of Marie-Lourdes Poteau and the late Presnor Poteau, and sister to Raphaella Marie-Paule Poteau and the late Michaelle Aurore Poteau.

In addition to her mother and sister, Marcelle leaves behind: her aunts, Evelyne Ferrari Bernard, Rose-Berlande Canon, Yvanne Poteau, and Marie-Michelle Poteau; her uncles, Michelet Decossard, Edel Mirville, Yvon Decossard, and Frantz Decossard; and her godmother, Romaine Omero. Marcelle also leaves behind great aunts, great uncles, god brothers, god sisters, god children, and many, many cousins!

Eraina L. Scott gained her angel wings on December 9, 2021. She was born on August 27, 1968. She transformed home to be with her parents Dorothy Williams and Barry Pearson. Eraina is survived by her dad, James “Sonny” Williams who raised her. Eraina is a long-time resident of Maryland, where she resided with her daughters. She worked as a Security Guard at J.W. Marriott for 23+ years. She poured her heart and soul into her work and her co-workers absolutely admired her.

Eraina was talented in so many tangible aspects of her life. She was a genius, and she loved the Lord. Eraina touched the lives of many people and made it a point to make all encounters feel important and special. She showed up when it mattered, had your back, gave to those in need, and would defend her loved ones should the need arise.

Eraina enjoyed playing games on her phone, cuddling on the couch watching movies and she loved to eat. Her favorite saying about food was “Let me taste that” or whisper when she did not want to share “Y’all want some; ok good,” Most importantly she was a terrific mom, her children were her life. There was never a day that she didn’t brag about her four Queens.

Eraina is survived by her four daughters, Aysha, Alexis, Angel, and Amani, her siblings, Vanessa, and James, her nieces, La’Daja, Parris, Kodi, Kori Ivy, Shante’, Syria, A’Jurney, Kimbra, and Kailyn, her nephews, Jamal, Tobias, Dylan, Damian, and Deandre, her grandson, Asa, her cousins, Joanna, Octavia, Tony, Robbie, Gerald, and Richard, aunts and uncles as well as her close friends Denise, Karen, Regina and her co-workers.

We celebrate and honor her with her favorite word “Victory.”

Caleb Anthony Wheeler was born August 12, 2009 in Montgomery, Alabama. He was outspoken, energetic, and talkative. Caleb enjoyed playing video games and spending time with family and friends.

Caleb was diagnosed with stage IV renal medullary carcinoma (RMC) in December of 2018 at the age of 9. Immediately after diagnosis, his right kidney was removed. His treatment consisted of multiple rounds of chemotherapy and countless blood transfusions. In September of 2019, Caleb went into remission. Unfortunately, In April of 2021, we received the devastating news that Caleb’s cancer had returned. Our Angel earned his wings on September 28, 2021.

He is survived by: his mother Jalana Wheeler; grandmother, Cynthia Wheeler; grandfather, Bruce Blackshear; great grandmother, Corrie Shepherd; great uncles, Darrly Wheeler and Charles Wheeler; uncles: Renaldo, Wheeler, Jory Wheeler, and Trekyle Wheeler; auntie, Tia Wheeler; cousins: Raegan, Nia, Ava, Kylee, Harmoni, Amonei, Zykiara Desiree, Kenli, and Joiniya; and a host of other family and friends.

Micah Wade was born on February 28, 2001, to Milton and Monique Wade in Paterson, New Jersey. He transitioned on September 25, 2021, due to complications of renal medullary carcinoma (RMC).

Micah attended O.I.P.H. Middle School and graduated from Camden Catholic High School in 2019. Prior to his diagnosis, Micah was enrolled at State College of Florida, majoring in Graphic Arts.

Micah was a talented young artist with a courageous heart filled with so much love.  He was a multifaceted intellectual who came to have many interests. He was an avid reader who loved learning different languages. He enjoyed many athletics such as cycling, archery, basketball, and weightlifting. Micah was an animal lover who helped any in need without hesitation. He loved to cook and try out new recipes he discovered on the internet. He enjoyed exploring the city and capturing the beauty of the world and his loved ones through the lenses of his phone. Lastly, he loved and valued all the time spent with his family and friends.

Micah leaves to cherish his memories his parents Milton and Monique Wade; his brother Jaloni Heard; His sister Jada Wade; his grandparents, William and Georgia Johnson; his aunts, uncles and cousins, as well as friends whom he loved dearly.

Reinaldo Costa da Silva was born on May 26th 1982, in São Paulo, Brazil. He had a challenging childhood, but with his strength and good heart, he was able to overcome various difficulties and became successful.
Since childhood he knew he had  sickle cell trait, but being a common characteristic in his family, the only concern he had was not to have children with someone who also had sickle cell trait.
On January 26, 2019, Reinaldo began experiencing a strong pain in his abdomen. He went to the hospital and the tests confirmed he had cancer on the right kidney. Even though it was mentioned several times he had sickle cell trait, unfortunately the doctor in charge did not make any connection to RMC.
Three days after the cancer confirmation, he had his right kidney removed. The doctor said the surgery went well and the cancer had not spread to other parts of his body. The biopsy confirmed RMC
Three months after his surgery, Reinaldo had a cough with blood and was hospitalized for 2 weeks. At this time, it was confirmed that the cancer had spread to the right lung.
After many cycles of chemotherapy and radiation, the cancer continued to spread and was now in his bones.  Reinaldo passed away due to complications of RMC on May 27th 2021 at 1:30 am, just one day after his 39th birthday.  Life has been difficult for Mainara, his wife of three years and the children, Marlene (Mom), Eliezer (Dad), his siblings, Renata, Cicero, and Simone, remaining family and friends.
He will forever be loved and missed so so much.

Carlos Moran was an elementary school teacher, national Judo Champion, an amazing uncle, son, brother and loving husband to his wife, Charissa. If you knew Carlos or just met him on the street, you would instantly notice that he had a positive outlook on life. He was an incredibly sweet person and loved by so many. Shortly after graduating from college, getting married and starting his teaching career, Carlos was diagnosed with Stage 4 renal medullary carcinoma (RMC), an aggressive and often fatal kidney cancer found in individuals with sickle cell trait.

He was only 27.

Carlos started practicing Judo when he was 8 years old. His passion, dedication and persistence to perfect his skills paid off by winning the competition and becoming a “National Judo Champion.” He travelled around the world to compete and taught Judo for 10 years. His status as a third-degree black belt and “National Judo Champion” did not change his kind and gentle demeanor. Throughout his life, he loved children and knew one day that he would become an educator. His passion for teaching led him to pursue a career in education.

Upon completing college, Carlos began teaching 6th, 7th, and 8th grade science, and later began teaching special education. Even throughout his cancer battle and numerous treatments, he found the strength to return to his classroom at Norman S. Weir, a public school in Paterson. When the cancer became too advanced, he made the difficult decision to place his teaching career on hold. It was heartbreaking to leave his students because he loved them so much.

Within the course of four years, Carlos endured seven different types of treatments, five surgeries, and three procedures. He received his first treatment at New York Presbyterian Hospital and after seven months his scans revealed that he was in remission. We rejoiced with the news and felt like he had conquered this cancer.

Six months later the scans revealed that there were new cancer cells growing in his body. The decision was made to seek advise from Dr. Pavlos Msaouel, physician at UT MD Anderson Cancer Center in Houston, Texas. Not only did this young newly wed couple have to cope with the diagnosis of cancer, but for a couple of years they had to travel between New Jersey and Texas for Carlos to receive treatment.

In March of this year, Carlos was to receive his last treatment of the Phase 1 trial at UT MD Anderson Cancer Center. This happened to be during the rise of COVID-19 pandemic. While in Texas, Carlos had a stroke that affected his speech. He was taken to the emergency department by his wife and later admitted to the hospital. Carlos remained in the hospital a little over a week with his wife by his side. Due to the pandemic, Charissa was not allowed to leave the hospital and their family was not allowed to travel to Texas without being quarantined for 14 days since New Jersey was a hot spot for COVID-19. However, Ritchie Johnson, President/Founder of the Chris “CJ” Foundation, Inc. was given permission to be in the room with Carlos and Charissa during last seven hours of his life. She was able to calm Charissa down and face the fact that he had lived a beautiful life and was tired and very weak. Because of Ritchie, Charissa was able to cuddle with Carlos for the last time and watch the Avenger’s End Game. He passed away on April 28, 2020 as his wife laid in his arms.

Carlos will be missed. He is loved by all and a friend to many. He was kind and took the biggest pleasure in helping everyone he could. He loved to make everyone laugh. He enjoyed life, loved laughing, and being with family. Although he is physically not here, we can remember a strong, loving, comical man, who would do anything to make us smile. His spirit will forever live in our hearts.

Matthew went by many names. He was called Teo by his family and Penni by his friends. He was the second son of Marlene Costales Kravitz and E. Justin Pennington. He was born 24 Nov 1978 and died 19 Mar 2016. He was married to Marie Liu for a short 3 ½ years. Besides his wife and parents, he is survived by his step-father, brother, 3 sisters, spouses of his siblings, a grandmother, grandfather, many aunts, uncles, cousins and a large family of friends.

Matthew made an impression on everyone he met. During Matthew’s fight with cancer many of his friends told his family how he had changed their lives. He was absolutely passionate about music and pushed people to expand their boundaries and comfort levels in music. He was also a gifted writer. He saw a story in everything. His favorite book in the Bible was the Book of Job. He said it was such a great story. He would rearrange the figures in his grandmother’s Christmas crèche to tell a different story every time he saw it.

In August 2015, Matthew started having back pain and blood in his urine, but didn’t see a doctor for a month. Because RMC is rare and unknown to most of the medical community, he was not diagnosed until 29 Jan 2016 when he had his left kidney removed. He was referred to an oncologist who referred Matthew to Dr. Tannir at MD Anderson. Unfortunately, the cancer was too aggressive. He died 7 weeks 5 days after his diagnosis.

Matthew had the ability to see the marginalized and teach them to embrace, that which made them unique. Thence more than 350 people attended his funeral. He touched so many lives. He loved his wife with all of his being and she filled all his empty spaces. What I, his mother, loved most about him and miss the most is he ability to see the positive in things most people miss. He taught us all to look at things in a different way.

We, as his family, would want the medical community to know that RMC has many colored faces. It is a danger to anyone who is a sickle cell trait carrier. Be tested, be aware, don’t wait. We also pray that not another life is lost to this devastating cancer.

Sandra Marie Prevost was born on February 29, 1968 to Joseph Earl Prevost and Della Marie Prevost, whom preceded her in death. Sandra was diagnosed with Renal Medullary Carcinoma in April of 2015 and was called to be with her heavenly father 11 months after diagnosis. She fought a courageous fight, always holding on to her faith in God. She exuded energy and thirst for life and a kind heart that reflected in both her words and actions.

Born and raised in Port Arthur, Texas, Sandra graduated from Thomas Jefferson High School in 1986 and went on to obtain a Bachelors and Masters of Nursing Degree from Lamar University. Her dedication to service and sisterhood were evident in her love for and continued activeness with Delta Sigma Theta Sorority, Inc. Though her time here felt much too short, Sandra spent it by focusing on meeting the needs of those around her. At an early age, she knew helping others through their difficult times of illness and healing was her calling, so Sandra threw her talents into nursing others back to health. She gave of herself for many years, working with patients at St. Mary’s Hospital in Port Arthur, before continuing her work in Houston at Memorial Hermann Healthcare System. She furthered her cause by shifting her focus to patient safety while at Houston Methodist Hospital. She received her CPPS certification in Patient Safety and traveled internationally sharing her knowledge of statistical metrics to advance patient and workforce safety to prevent harm. Sandra gave her all to her family; often sacrificing her needs to be there for her parents, siblings, nieces and nephews. She was the glue that connected her family as a village unit. Sandra’s loving reach knew no bounds, and her absence will leave a void that none can fill.

She has left to honor her memory her two brothers, one sister-in-law, nieces, nephews, two great nieces, one great nephew, her fiancé and two great-aunts, along with a host of family, friends and loved ones.

David W. Anderson was born in Newburgh, New York on December 29, 1973. David was diagnosed with RMC in June 2014.  David fought hard through this journey and never complained. He continued to run his land development company while continuing to spend time loving and enjoying his family and friends. David lived every moment to the fullest and loved life.  After a courageous fight, David passed September 16, 2015; just 15 months passed his diagnosis.

David and his family lived in Tyler Texas and would commute to MD Anderson Cancer Center in Houston Texas for his treatment.  He was a devoted husband, father, son, brother and friend, always putting the needs of others before him. David leaves to cherish his dedicated wife of 18 years, three sons, one daughter, his mother, father, two brothers and one sister.

Holly Rae DeLeon Salisbury, 31 was called by our heavens above on September 24, 2014 in Lago Vista. She was born on April 28, 1983 to James and Jerri DeLeon of Buda; she was the youngest of three girls.  Her childhood was spent in Buda.  She attended Buda Elementary School and was a graduate of Hays High in 2001.  Throughout her childhood years she was involved in 4-H and Vo-Ag.  She was so special and touched the lives of many with her soft personality.  Holly was united with Jason Salisbury of Lago Vista on October 9, 2010.  With odds against her, she was able to give birth on April 20, 2012 to their son Liam Rocket Salisbury. In January of this year she was diagnosed with a rare form of cancer called renal medullary carcinoma.  Throughout her battle, she managed to touch and inspire many with her positive attitude.

She leaves behind her husband Jason and son Liam Rocket, parents, Joseph Deleon & Jerri L. Walker Deleon, sisters, numerous nieces and nephews and many friends.

Brian, 23 was the son of Raymond and Gina Mary Jimenez and the oldest of three siblings. He lived in Perth Amboy, New Jersey.
Brian fought a hard battle against RMC, an extremely rare and aggressive cancer for two years. Prior to his diagnosis in January 2016 he was working and going to school. He had been healthy his entire life.

In early 2016, his right kidney and surrounding lymph nodes were removed. A few weeks later his physicians from CHOPS in Pennsylvania began chemotherapy and radiation treatment. Brian remained hopeful throughout his battle with cancer and was looking forward to returning to school and work. After about 4 months the cancer returned. Brian’s strength and determination to beat RMC is what kept his family strong. He was a true warrior in every sense of the word.

God saw that Brian was tired and weak and called him home. He transitioned to heaven on Thursday, January 11th with his family by his side.

Brian was an amazing son, brother, boyfriend, nephew, cousin and friend to many. In this time of sorrow, his family and friends are left to mourn his untimely passing. Heaven has gained another angel and hero.

Rest in peace Brian.

Bardolph “Bardy” J. McConnell III passed away November 14, 2019 in Portland. He was 48 years old. Bardy was born on February 22, 1977 to Bardolph J. McConnell Jr. and Mary Graham. Throughout his life he worked for various companies. If you knew Bardy, you knew that he had a huge heart and it showed through the love for his children. He relished his role as a father and made spending time with them a priority. In his spare time he enjoyed cooking, grilling for family and friends, and listening to old school music where he could show case his smooth steps. Bardy had a personality that mirrored his hear of gold. He had a wonderful sense of humor, but more importantly he had compassion for others in need and has been known to extend a helping hand.

On December 19, 2018, Bardy’s world was turned upside down. He received the devastating news that he had Renal Medullary Carcinoma (RMC). Bardy began experiencing back pain, but did not think it was anything to worry about. It wasn’t until he noticed blood in his urine that he went to the hospital to be examined. At that time he was told that he had a urinary tract infection and was given antibiotics to take, however, the symptoms of blood in his urine and back pain continued. Three weeks later, the CT Scan showed a tumor in his right kidney. The biopsy revealed that he had renal medullary carcinoma (RMC). Bardy fought hard and remained optimistic throughout his 11 month journey. He would cook, go fishing and spend time with his children until he became so weak that he could not walk and consequently passed away. Although it’s unfortunate; the love ones that he left behind understand that he’s no longer suffering and his pain is now at ease.

Dawud “Dave” L. Potak-Gibbs left this world on April 21, 2018 with his wife Laura and daughter Summer by his side at home. Dave bravely fought Renal Medullary Carcinoma (RMC) for two years and inspired many with his strength and optimism.

Born on February 7, 1983 in Philadelphia, Dave graduated from Germantown High School and most recently resided in Bryn Mawr, Pennsylvania.

As a chef, he worked for years in corporate dining for Compass Group, as well as in fine dining restaurants such as R2L and The Capital Grille. Most recently he was a stay at home dad, a cherished experience that was invaluable for Summer.

After meeting in 2006, Dave and Laura (a native of Pittsfield, MA) were inseparable and shared each other’s interests, such as Philly sports, camping, softball, cooking, and music. They were married on May 13, 2011.

Dave was loved by many and will be missed dearly. Aside from Laura and Summer, he leaves his mother Elizabeth Vann, mother-in-law Mary-Jane Sackett, stepfather-in-law Russell Sackett, and sisters Saadiqa Vann, Dannette Vann, Carmen Vann, Ametria Gibbs, and Renee Wigfall. He also leaves siblings-in-law Sarah Scarola, Karen Potak, David Potak and Catherine Potak, as well as their spouses. Dave also leaves many nieces and nephews, and many friends who were like family, as well as a cat Christine. He was predeceased by his father David Montgomery Gibbs.

Rhianna Ferguson was 26 when she died of a rare type of kidney cancer called renal medullary carcinoma – doctors removed her kidney to try and beat the disease but it spread to her spine

Heart-breaking tributes have flooded in for a mother who died from cancer after a two-year battle.

Rhianna Ferguson was told she may have only months to live when diagnosed with a rare form of kidney cancer in October 2016.

The 26-year-old, who underwent surgery to remove a kidney in hope of helping her beat the disease, died in her sleep last week.

Ms Ferguson’s sister Renacia, from Greater Manchester, led the tributes, describing her as her ‘biggest inspiration’.

Renacia told the Manchester Evening News: ‘Rhianna was the most thoughtful diva in the world, she knew how to get her own way but she always helped anyone.

‘Rhianna would always pay, she was always giving, but she was always putting a smile on someone’s face.

‘Whether it was laughing with her or at her she would be making someone laugh. She was just one in a million.

‘Everything she was will live on through her daughter, the Rhianna part two. She will be everything Rhianna was and more and continue to make her mum proud.’

Rahsohn Wali, Jr., 11, of Hamden Connecticut passed away April 27, 2017 in the Cleveland Clinic in Ohio after a courageous battle with RMC. Sohnny (as he was affectionately called) was termed “One in a million” by his 4th grade teacher. He always challenged himself to accomplish more difficult math than anyone in his class. He also took time to help the younger children learn how to read. His loving nature was even more evident in his interactions with his three year old sister. Sohnny loved to play basketball, baseball and cook.

Sohnny is the beloved son of Aiyana Parkinson of Hamden and Rahshon R, Wali Sr. of Meriden.

Jesse was in and out of the emergency room for approximately two months due to pain and blood in his urine. A CT Scan was done in March 2017, which revealed a mass on his kidney due to an infection. He was discharged home with antibiotics. In April, he presented to the emergency room again with pain and blood in his urine.  This time an ultrasound was done and he was admitted into the hospital so that the doctor could treat the infection.  Jesse received antibiotics intravenously and by the 4th day, he was discharged home with a prescription for more antibiotics. Two weeks passed before he was seen by the physician. For two months Jesse was treated with antibiotics for an infection.

On May 5th, the bone scan revealed a spot in his pelvic area. The first biopsy report showed that Jesse had an infection.

At this time his mother, April decided that she needed to get another physician and go to a different hospital. On May 18th, a second biopsy was done. On May 27th, the doctor confirmed that Jesse did have RMC. By this time the cancer had metastasized to his bones and liver.  He had one round of chemotherapy. Jesse became very sick from the chemotherapy which prevented him from having any quality time with his young daughter.

Jesse was later placed under hospice care and transitioned to Heaven on September 8, 2017 at the young age of 20. Just a little over three months passed his diagnosis.

Most patients diagnosed with RMC have the sickle cell trait.  Jesse did not have the sickle cell trait. He had what we call renal cell carcinoma unclassified with medullary phenotype (RCCU-MP), a rare RMC variant that occurs in people without sickle cell trait or disease. Dr. Msaouel estimates that ~5% of all RMCs are RCCU-MPs. As far as we know, this variant behaves in the exact same way as RMC. Patients with this variant are eligible for all our RMC clinical trials. Medical providers should be aware that RMC can affect patients of all races and not just those of African descent.

Jerrod Paul Rogers was born on May 21, 1991 in Hutchinson , Kansas. He had a difficult childhood and was placed in foster care at the age of 7. Jerrod and his sister lived in several foster homes before meeting their forever family and being adopted in 2006. In late February 2016, Jerrod was diagnosed with a cancer that proved difficult to identify after a biopsy on a swollen lymph node. Despite undergoing chemotherapy, the cancer continued to spread. Following a second biopsy, Jerrod was diagnosed with renal medullary carcinoma on June 6. Two days later Jerrod entered the hospital for his final battle. After expressing the wish to go home, Jerrod returned to his parents’ farm and spent his final hours surrounded by family and friends. He died on June 16, 2016 at the age of 25 less than four months after the initial diagnosis.

Jerrod enjoyed a variety of activities as a teenager taking part in athletics, choir, and a vocal ensemble in high school. After graduation, Jerrod spread his wings and lived many adventures -traveling to different states and trying new things. He experienced life in Minnesota, Georgia, and returned to Kansas to live in Manhattan, Wichita, and then attend Butler Community College for a year. In 2014 his journeys took him to Denver, Co. There he met Jen Miller who he married on May 28, 2015. He loved to talk about “my wife” and truly loved her with all his heart. In October, 2015 Jerrod and Jen moved back to his hometown of Hillsboro, KS.

Jerrod’s passions in life included music and weight lifting. He enjoyed many kinds of music and would sing Jen their special song when he would take her to work. He dreamed of having a career in music someday. He also enjoyed playing video games and always found fishing a relaxing sport.

Jerrod is survived and remembered by his wife, parents, brothers, sisters, nephew and many extended family members and friends.

Aniksha Patel, 24, of Manchester, England passed away on December 1, 2016 after a hard fought battle against Renal Medullary Carcinoma (RMC). Aniksha’s journey touched the hearts of so many. In March 2013 she was diagnosed.  She went through many chemotherapy treatments and surgeries.  In February 2014 she wrote this:  “I think that more people need to be aware of how suddenly cancer can come out of no where and I urge anybody who feels like something may not be right with their body to get it checked out.  My diagnosis started with a bit of back pain and an infection and within weeks my life was turned upside down.  It’s been a roller coaster ride, but with perseverance and positivity I’ve managed to cope better than I ever thought I could.  If cancer has done one good thing, it’s made me appreciate just how precious life is.”  Our deepest sympathies are with her parents, brothers and many loved ones and friends during this difficult time.

Conroy Gearpaul Smith was born in Jamaica to Roma Crockwell and Anthony Smith. He was the eldest of three siblings.  At the age of 5, Conroy and his family moved to Bermuda and in 2012 Conroy and his mother moved to Nottingham England to be near his sister Shaunelle. Conroy was diagnosed with Renal Medullary Carcinoma in December 2015 and on August 4, 2016 at the young age of 39, he passed away in England.

Conroy was a passionate musician and a loving brother.  He was better known to many as DJ Spyro and for his breakthrough hit, Cutesy Cutesy that was shot in Bermuda. Right until the end, Conroy would talk about his fans back in Bermuda, and he was desperate to go back to the island to perform one more time. He had tried making inroads into the local music scene when he was diagnosed with cancer at the end of 2015.

Conroy leaves to cherish his memories; his two sisters, nephews, nieces, stepfather and numerous other relatives.

To view Conroy’s video click on the link.

https://youtu.be/VTT3lnQvmog

Christopher S. Johnson was born on November 18, 1972, in Houston, Texas, to Charles and Ritchie Johnson. In June 2011, Chris was diagnosed with Renal Medullary Carcinoma (RMC), a rare and aggressive form of kidney cancer. Despite fighting courageously, he passed away 15 months later, leaving behind a legacy of strength and resilience. Chris received most of his medical care at MD Anderson Cancer Center in Sugar Land, under the expert guidance of Drs. Tannir and Sarma.

During his battle with cancer, Chris found it difficult to remain idle. Channeling his energy and creativity, he founded CSJ Photography, where he captured life’s moments through his lens and completed several photo shoots. His creativity didn’t stop there; he and his friends designed a unique logo for a baseball cap using his initials, “CJ.” The “C” symbolized his arms, and the “J” represented his body, intertwining to stand for “Standing Strong While Fighting With Faith.” This powerful design has since become the logo for the Chris “CJ” Johnson Foundation, Inc., a symbol of his enduring spirit.

Chris was also an accomplished world traveler, thanks to his career with Shell. His adventures took him to Switzerland, Spain, Germany, Italy, Brazil, Dubai, Cabo San Lucas, Amsterdam, and many other global destinations. He had an insatiable curiosity, always eager to learn about different cultures, ethnic cuisines, oil and gas industries, and the stock market. His travels and inquisitive nature contributed to his extensive knowledge and broad perspective on life.

Chris was a man who cherished his family and friends deeply. Known for his infectious laughter and vibrant personality, he was always the life of the party. His warm aura, magnetic eyes, and captivating smile drew people—both young and old—toward him, leaving a lasting impression on everyone he met.

Chris leaves behind a loving family, including his son, daughter, grandson, parents, brother, sister-in-law, grandparents, and numerous aunts, uncles, nieces, nephews, cousins, and a wide circle of friends.

His legacy continues to shine through the Chris “CJ” Johnson Foundation, Inc., ensuring that his spirit of strength, creativity, and love lives on.