Homepage
previous arrow
next arrow
Slider
7TH ANNUAL KEEPIN’ IT RENAL RUN/WALK REGISTRATION

The Chris “CJ” Johnson Foundation Inc., established in 2013, is a 501 (c)3 non-profit charity organization based in Sugar Land, Texas. Our mission is to find a cure fo Renal Medullary Carcinoma (RMC) worldwide through awareness, education, and research. Our primary focus is on individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for this rare and aggressive form of kidney cancer. In addition, the foundation offers emotional, spiritual and financial support to individuals diagnosed with RMC, and donate funds annually to The University of Texas MD Anderson Cancer Center to advance RMC research.

Our vision is to establish partnerships with primary care physicians, urology specialists, oncologist, hospitals, news media, legislators and community based organizations. Collaborative multi-institutional efforts are needed to better understand the biology of RMC. Heightened awareness may potentially enable individuals with SCT to better understand the importance of pursuing early diagnostic testing.

WHAT IS OUR NEXT STEP?

There are many foundations and medical facilities conducting research on breast cancer, lung cancer, colon cancer, etc., but very little on kidney cancer and specifically RMC.  There is a need to increase awareness in areas with high prevalence of sickle cell trait and other sickle blood disorders. We are advocating for a CHANGE.  It is our desire that individuals with sickle cell trait are informed of the potential risk of RMC.  It would be appropriate for individuals that are trait carriers and have persistent or recurrent renal symptoms to have radiological studies (CT Scan) and a comprehensive urinalysis.  Getting the word out is the greatest gift that I can give to my son.

We must work together to support the researchers, medical professionals, advocates and organizations dedicated to treating and curing this disease. To honor the memory of the loved ones that we have lost or that are fighting for their life, let us drive progress to enhance cancer prevention, detection and treatment.

Together we will emerge stronger and with renewed hope for a better future!!!!

Please share this website with others and like us on Facebook.  We need a village to get on board.

Board of Directors:  Ritchie W Johnson, President/Founder; Marc Johnson, Executive Director; Angela Hawks-Johnson, Director/Secretary

Medical Advisors: Nizar Tannir, MD, FACP, The University of Texas MD Anderson Cancer Center, Houston; Pavlos Msaouel, MD, PhD, The University of Texas MD Anderson Cancer Center

LATEST NEWS

National Organization for Rare Diseases (NORD)

We are so excited that renal medullary carcinoma (RMC) is listed with NORD as a rare disease. A special thank you to Dr. Msaouel for writing the report. Please see attached link. https://rarediseases.org/rare-diseases/renal-medullary-carcinoma/ The Chris "CJ" Johnson Foundation Inc., is listed as a resource on NORD ...
Read More

Ritchie Johnson interviews with Voyage Magazine

Meet Ritchie Johnson of Chris “CJ” Johnson Foundation in Southwest of Houston A special thank you to the staff at Voyage Houston Magazine for allowing me to share my journey with my son, Chris.  Today we’d like to introduce you to Ritchie Johnson. Ritchie, please share your story with us ...
Read More

Update on the 6th Annual Keepin’ It Renal Run/Walk

We had a beautiful morning on March 23, 2019 to honor Chris Johnson, Byron Nash, Jerrod Rogers, Shawniece Wilmore, David Anderson, Joshua Seque, Joshua Nolan, Rekita Powell, Conroy Smith, Aniksha Patel, Holly Salisbury, Matthew Pennington, Sandra Prevost, Rahsohn Wali Jr, Dawud Potak-Gibbs, Rhianna Ferguson and so many more that fought ...
Read More

Mother Turns Pain Into Purpose

Pain into purpose: Mother who lost adult son to cancer starts awareness foundation POSTED 11:31 AM, MARCH 21, 2019, BY WEB STAFF, UPDATED AT 10:35AM, MARCH 22, 2019 https://cw39.com/2019/03/21/pain-into-purpose-mother-who-lost-adult-son-to-cancer-sickle-cell-starts-awareness-foundation/ Ritchie Johnson, President/Founder Chris Johnson Foundation with Sherron Melton, Achor CW39 and Maria Sotolongo, Meteorologist CW39 ...
Read More

Rhianna Ferguson

Rhianna Ferguson was 26 when she died of a rare type of kidney cancer called renal medullary carcinoma – doctors removed her kidney to try and beat the disease but it spread to her spine Heart-breaking tributes have flooded in for a mother who died from cancer after a two-year ...
Read More

African Sickle Cell News & World Report

Ritchie Johnson, President and Founder of Chris "CJ" Johnson Foundation was featured in the African Sickle Cell News & World Report, October-December 2018 edition. Please click on the link below to read the articles. Sickle Cell News ...
Read More

SAVE THE DATE FOR THE 6TH ANNUAL 5K Keepin’ It Renal Run/Walk

PLEASE MARK YOUR CALENDARS NOW FOR OUR 6TH ANNUAL KEEPIN' IT RENAL RUN/WALK ON MARCH 23, 2019 AT SUGAR LAND MEMORIAL PARK. ONLINE REGISTRATION SHOULD BE UP SOON. CREATING RENAL MEDULLARY CARCINOMA AWARENESS This is the main fundraiser for the Chris "CJ" Johnson Foundation, Inc. It is because of our ...
Read More

Marlene Kravitz Shares Her Story About Losing Her Son To RMC

Matthew Pennington, Age 37, lived in Albuquerque, New Mexico. Matthew was diagnosed with RMC in January of 2016 and passed away three months later.  His mother, Marlene has consented to sharing her story with other parents who may be faced with the same or possibly different catastrophic illness such as ...
Read More

RMC Clinical Trials Available at MD Anderson Cancer Center

Dr. Msaouel has prepared a trial schema for physicians to know the scheduling of the trial testing the combination of the proteasome inhibitor ixazomib (targeted therapy) with gemcitabine and doxorubicin. The links for the trial are:https://clinicaltrials.gov/ct2/show/NCT03587662  and https://www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials/clinical-trials-index/clinical-trials-detail.ID2018-0065.html MD Anderson now has two trials specifically designed for patients with RMC ...
Read More

Dr. Pavlos Msaouel, MD, PhD

Congratulations to Pavlos Msaouel, MD, PhD on your new appointment as Assistant Professor, Department of Genitourinary Medical Oncology, MD Anderson Cancer Center. Dr. Msaouel received his medical degree from the University of Athens and has committed a portion of his time to researching Renal Medullary Carcinoma (RMC). He has graciously ...
Read More
Loading...