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National Organization for Rare Diseases (NORD)

  • October 08, 2019
  • media
  • John Ritchie

We are so excited that renal medullary carcinoma (RMC) is listed with NORD as a rare disease. A special thank you to Dr. Msaouel for writing the report. Please see attached link. https://rarediseases.org/rare-diseases/renal-medullary-carcinoma/ The Chris “CJ” Johnson Foundation Inc., is listed as a resource on NORD.

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Ritchie Johnson interviews with Voyage Magazine

  • April 03, 2019
  • media
  • John Ritchie

Meet Ritchie Johnson of Chris “CJ” Johnson Foundation in Southwest of Houston A special thank you to the staff at Voyage Houston Magazine for allowing me to share my journey with my son, Chris.  Today we’d like to introduce you to Ritchie Johnson. Ritchie, please share your story with us. How did you get to […]

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Update on the 6th Annual Keepin’ It Renal Run/Walk

  • March 23, 2019
  • media
  • John Ritchie

We had a beautiful morning on March 23, 2019 to honor Chris Johnson, Byron Nash, Jerrod Rogers, Shawniece Wilmore, David Anderson, Joshua Seque, Joshua Nolan, Rekita Powell, Conroy Smith, Aniksha Patel, Holly Salisbury, Matthew Pennington, Sandra Prevost, Rahsohn Wali Jr, Dawud Potak-Gibbs, Rhianna Ferguson and so many more that fought a courageous battle with RMC. […]

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Mother Turns Pain Into Purpose

  • March 21, 2019
  • media
  • John Ritchie

Pain into purpose: Mother who lost adult son to cancer starts awareness foundation POSTED 11:31 AM, MARCH 21, 2019, BY WEB STAFF, UPDATED AT 10:35AM, MARCH 22, 2019 https://cw39.com/2019/03/21/pain-into-purpose-mother-who-lost-adult-son-to-cancer-sickle-cell-starts-awareness-foundation/   Ritchie Johnson, President/Founder Chris Johnson Foundation with Sherron Melton, Achor CW39 and Maria Sotolongo, Meteorologist CW39.

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African Sickle Cell News & World Report

  • November 01, 2018
  • media
  • John Ritchie

Ritchie Johnson, President and Founder of Chris “CJ” Johnson Foundation was featured in the African Sickle Cell News & World Report, October-December 2018 edition. Please click on the link below to read the articles. Sickle Cell News

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SAVE THE DATE FOR THE 6TH ANNUAL 5K Keepin’ It Renal Run/Walk

  • October 08, 2018
  • media
  • Kathy Dong

PLEASE MARK YOUR CALENDARS NOW FOR OUR 6TH ANNUAL KEEPIN’ IT RENAL RUN/WALK ON MARCH 23, 2019 AT SUGAR LAND MEMORIAL PARK. ONLINE REGISTRATION SHOULD BE UP SOON. CREATING RENAL MEDULLARY CARCINOMA AWARENESS This is the main fundraiser for the Chris “CJ” Johnson Foundation, Inc. It is because of our supporters that we are able […]

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Marlene Kravitz Shares Her Story About Losing Her Son To RMC

  • October 03, 2018
  • media
  • Kathy Dong

Matthew Pennington, Age 37, lived in Albuquerque, New Mexico. Matthew was diagnosed with RMC in January of 2016 and passed away three months later.  His mother, Marlene has consented to sharing her story with other parents who may be faced with the same or possibly different catastrophic illness such as Cancer. Here is where her […]

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RMC Clinical Trials Available at MD Anderson Cancer Center

  • August 20, 2018
  • media
  • Kathy Dong

Dr. Msaouel has prepared a trial schema for physicians to know the scheduling of the trial testing the combination of the proteasome inhibitor ixazomib (targeted therapy) with gemcitabine and doxorubicin. The links for the trial are:https://clinicaltrials.gov/ct2/show/NCT03587662  and https://www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials/clinical-trials-index/clinical-trials-detail.ID2018-0065.html MD Anderson now has two trials specifically designed for patients with RMC and renal cell carcinoma unclassified […]

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Dr. Pavlos Msaouel, MD, PhD

  • July 04, 2018
  • media
  • Kathy Dong

Congratulations to Pavlos Msaouel, MD, PhD on your new appointment as Assistant Professor, Department of Genitourinary Medical Oncology, MD Anderson Cancer Center. Dr. Msaouel received his medical degree from the University of Athens and has committed a portion of his time to researching Renal Medullary Carcinoma (RMC). He has graciously agreed to provide us with […]

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“Mama I’m Tired” by Ritchie W Johnson

  • May 30, 2018
  • media
  • Kathy Dong

Thirty-nine years into her nursing career, Ritchie Johnson was making plans to retire soon.  She dreamed of relaxing and traveling around the world. Until her youngest son, Chris, was diagnosed with a rare, aggressive, and fatal kidney cancer, known as Renal Medullary Carcinoma (RMC) Ritchie placed her nursing career on hold so that she could […]

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