Matthew Pennington, Age 37, lived in Albuquerque, New Mexico. Matthew was diagnosed with RMC in January of 2016 and passed away three months later. His mother, Marlene has consented to sharing her story with other parents who may be faced with the same or possibly different catastrophic illness such as Cancer. Here is where her […]
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Dr. Msaouel has prepared a trial schema for physicians to know the scheduling of the trial testing the combination of the proteasome inhibitor ixazomib (targeted therapy) with gemcitabine and doxorubicin. The links for the trial are:https://clinicaltrials.gov/ct2/show/NCT03587662 and https://www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials/clinical-trials-index/clinical-trials-detail.ID2018-0065.html MD Anderson now has two trials specifically designed for patients with RMC and renal cell carcinoma unclassified […]
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Congratulations to Pavlos Msaouel, MD, PhD on your new appointment as Assistant Professor, Department of Genitourinary Medical Oncology, MD Anderson Cancer Center. Dr. Msaouel received his medical degree from the University of Athens and has committed a portion of his time to researching Renal Medullary Carcinoma (RMC). He has graciously agreed to provide us with […]
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Thirty-nine years into her nursing career, Ritchie Johnson was making plans to retire soon. She dreamed of relaxing and traveling around the world. Until her youngest son, Chris, was diagnosed with a rare, aggressive, and fatal kidney cancer, known as Renal Medullary Carcinoma (RMC) Ritchie placed her nursing career on hold so that she could […]
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My name is Luis Nunez. I was diagnosed with RMC on September 2015 at the age of 28. I have two boys, a 10 and 12 year old. I am married and we live in Jacksonville, FL. I have been getting chemotherapy or some type of treatment every two to three weeks since I was […]
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On March 24, 2018, over 200 warriors hit the track in Sugar Land Texas as advocates for Renal Medullary Carcinoma. Our speakers from MD Anderson; Drs. Tannir, Dr. Masaouel and Zita Lim gave an update on RMC research. They did a phenomenal job. My grandson, Marc Johnson II did an excellent job explaining to the […]
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Dr. Tannir is Professor of the Genitourinary Medical Oncology Department at MD Anderson Medical Center in Houston Texas. We are constantly reminding ourselves of the urgency of the work we do to find a cure for RMC. There is now hope for patients and families who are facing RMC. Your hard work and the work […]
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On March 25, 2017, over 200 warriors hit the track as advocates for Renal Medullary Carcinoma. Our event would not have been successful without our generous sponsors, donors, participants, vendors and volunteers. We appreciate each and everyone of you. This was the best event thus far. A special thank you to Angie Gooden who rocked the […]
Read MoreFish City Grill in Sugar Land, Texas will be sponsoring a fundraiser for the Chris “CJ” Johnson Foundation, Inc. for the 4th year in a row. This event will be Tuesday, June 6, 2017 from 11:00 am until 10:00 pm. Someone from the foundation will be present throughout the day. Please come out and support […]
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Dawud, age 33, was diagnosed with RMC April 2016 after two episodes of hematuria, with metastasis to the liver, lungs and bones. From April until September, he received chemotherapy treatments which helped to shrink the tumors. But his blood counts couldn’t tolerate a second round of chemo. In November, after seeing some regrowth in the […]
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