News

Feninna-Aikaterini Fights RMC

  • July 20, 2020

Written by her Mother, Lois Feninna lives in Volos, Greece with her parents, Marios and Lois and her younger brother, Filippos (Philip in English).  Prior to receiving the cancer diagnosis, Feninna was outgoing, friendly and very much into sports. I can see in her eyes that she is determined to beat this cancer. My girl […]

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RMC Advocacy through the 7th Annual Keepin’ It Renal Run/Walk 2020

  • June 06, 2020

This year because of COVID-19, the 7th Annual Keepin’ It Renal Run/Walk was postponed due to the pandemic. We could not let COVID-19 prevent us from our advocacy efforts and decided to have a virtual walk/run on June 6, 2020. Having our event virtually allowed people around the world to participate. For the first time […]

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7th Annual Keepin’ It Renal Run/Walk

  • June 06, 2020

The Chris “CJ” Johnson Foundation’s 7th annual Keepin’ It Renal Run/Walk scheduled for March 28, 2020 was postponed due to COVID-19 pandemic. We had to do the right thing and follow the directives of our local and state officials. Older adults and people of any age who have serious underlying medical conditions are at a […]

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7th Annual Keepin’ It Renal Run/Walk Postponed due to Coronavirus

  • March 17, 2020

The Coronavirus (COVID-19) knows no borders and has had a profound impact on the world. We, like many of you, are following CDC protocols and carefully following the news. In an effort to ensure the safety of our participants, volunteers, vendors, RMC patients and to comply with the directives of our local, state and federal […]

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Black History Month

  • February 17, 2020

Black history is American history, however, observing Black History Month in February gives us a chance to be intentional about learning more. While it’s wonderful to recognize the contributions of Dr. Martin Luther King Jr. and Rosa Parks, there are many other connections we can make to the African American community.As African Americans, it is […]

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Nicola Casey Keeps Husband’s Memory Alive!

  • February 16, 2020

Our story. Firstly, my husband Ricky Casey – my very own hero. Also a Greater Manchester firefighter! Unfortunately, our story doesn’t have the fairytale ending that we imagined when we met the love of our lives. Ricky asked me to marry him in Spain, September 2017. I was the happiest girl ever. We were busy […]

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RMC Connect Support Community

  • February 08, 2020

Chris “CJ” Johnson Foundation Inc. has partnered with Inspire and Kidney Cancer Association to launch the first and only support community specifically for RMC patients and their families. This is a platform where you can connect with others impacted by this aggressive form of kidney cancer. Even if you loss your loved one to RMC, […]

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7th Annual Keepin’ It Renal Run/Walk

  • February 07, 2020

RENAL MEDULLARY CARCINOMA (RMC) AWARENESS The Chris “CJ” Johnson Foundation, Inc. is hosting their 7th Annual Keepin’ It Renal Run/Walk on March 28th, 2020 at Sugar Land Memorial Park. (Large Pavilion) The park is located at 15300 University Blvd, Sugar Land, Texas 77479. You may check in starting at 0715. The event will begin promptly […]

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Real Story by Bernard Hsu

  • January 18, 2020

Dr. Bernard Hsu, is a very popular You tuber who happened to attend the 2017 Kidney Cancer Association Symposium in Miami. He attended the presentation where Dr. Pavlos Msaouel described the model of how RMC happens. At the time of the presentation, Dr. P. Msaouel was Chief Fellow, Hematology/Oncology at MD Anderson Cancer Center. This […]

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National Organization for Rare Diseases (NORD)

  • October 08, 2019

We are so excited that renal medullary carcinoma (RMC) is listed with NORD as a rare disease. A special thank you to Dr. Msaouel for writing the report. Please see attached link. https://rarediseases.org/rare-diseases/renal-medullary-carcinoma/ The Chris “CJ” Johnson Foundation Inc., is listed as a resource on NORD.

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