News

Update on Clinical Trials At UT MD Anderson by Dr. Pavlos Msaouel

December 12, 2024

Weblinks: MD Anderson webpage for the trial: https://www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials/clinical-trials-index/clinical-trials-detail.ID2023-1062.html NIH webpage for the trial: https://clinicaltrials.gov/study/NCT06444880 NCI webpage for the trial: https://www.cancer.gov/research/participate/clinical-trials-search/v?id=NCI-2024-04755 Description: This new clinical trial is testing a new treatment called ubamatamab for two rare and aggressive cancers: renal medullary carcinoma and epithelioid sarcoma. Both cancers lack a key protein named SMARCB1 and can often produce high […]

Celebrating the Life and Legacy of Chris “CJ” Johnson

November 18, 2024

Today, as we honor what would have been Chris “CJ” Johnson’s 52nd Heavenly birthday, we reflect on the extraordinary legacy he left behind. Chris’ vision and compassion continue to inspire us through the work of the Chris “CJ” Johnson Foundation, an organization dedicated to advocating for change and providing hope to countless families affected by […]

Annual 5K Global Virtual/In Person Run/Walk Registration Form (Pasadena, CA)

November 06, 2024

Let’s Unite As An Unstoppable Force for RMC Awareness! WHEN: Saturday, March 15, 2025, 8:30 am – 10:30 am WHERE: Brookside Park – Fannie-Morrison Picnic Area 360 North Arroyo Blvd (Next to Kid Space Museum) Pasadena, CA 91103 **Free Parking Available ENTRY FEE: $30/person (Includes T-Shirt) Additional Fee $5.00/shirt (If you want your shirt […]

12th Annual 5K Global Virtual/In Person Run/Walk Registration Form (Sugar Land & Virtual)

November 06, 2024

Let’s Unite As An Unstoppable Force for RMC Awareness! WHEN: Saturday, March 22, 2025, Virtual – anytime between 8:00 am – 7:00 pm In-Person – 8:30 am – 1030 am (Begin promptly at 8:30am) WHERE: Virtual – Run/Walk anywhere you choose In Person -Sugar Land Memorial Park (15300 University Blvd, Sugar Land, Texas 77479) […]

“In Memory of Julia: A Tribute to Her Strength and Resilience” By Ritchie Johnson

August 16, 2024

It is with a heavy heart that I share the passing of another RMC warrior, Julia, who was 46 years old and leaves behind three young children, including her nephew, whom she was raising.

“A Journey Through Grief: Lessons Learned from Losing My Father” By Gabrielle Hayward-Johnson

July 05, 2024

For those of you who do not know me, my name is Gabrielle Hayward-Johnson, and Chris Johnson was my father. My dad passed away from RMC in September 2012, just three weeks after my 6th birthday.

My grandmother, Ritchie, asked me to share with you about the impact my dad’s death has had on me – specifically, my personal journey of grief. I also want to share with you some lessons I’ve learned that may help others cope through their own grief.

Our Newest Volunteer – Shanice Johnson

July 04, 2024

Shanice Johnson is a passionate public health and health education advocate and a Certified Health Education Specialist (CHES). She received her undergraduate degree from LaSalle University in Philadelphia and a Masters in Public Health from the University of New England in 2019. Shanice has developed and implemented a variety of health education programs and fostered community partnerships with organizations and stakeholders to improve health outcomes and equity in New Jersey and California.

The Truth About Sickle Cell Trait

June 01, 2024

Sickle cell trait (SCT) represents a significant public health concern, particularly among populations with a higher prevalence of this genetic condition. SCT is inherited when a person carries one abnormal hemoglobin gene and one normal gene, typically without exhibiting symptoms of sickle cell disease (SCD).

Highlights of the 11th Annual Keepin’ It Renal Global Run/Walk 2024

April 06, 2024

Our 11th Annual Keepin’ It Renal Global Run/Walk proved to be a resounding success.

Hearthfelt Gratitude to Our Sponsors-11th Annual Keepin’ It Renal Run/Walk

March 31, 2024

We are deeply honored and grateful to extend our sincerest appreciation to all the sponsors who generously contributed to the success of the 11th Annual Keepin’ It Renal Run/Walk, held in several locations around the world during the month of March 2024. Your support has not only made our events possible, but has also pushed […]

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